From top left: Sherry Copenace, Doris Young, Tagaaq Evaluardjuk-Palmer, Barbara Bruce, Mabel Horton
About
The Grandmother's Council, a pivotal component of the ACT Consortium Indigenous Health Committee, operates under specific Terms of Reference guided by principles deeply rooted in Indigenous traditions and values. Comprised of distinctions-based Indigenous Elders, the Council provides essential guidance and wisdom to enhance the health and well-being of Indigenous Peoples participating in clinical trials across Canada.
Purpose and Objectives:
The Grandmother's Council serves to advise and enrich the work of the Indigenous Health Committee by integrating traditional knowledge and practices into clinical trial research. Their role includes:
Providing guidance on culturally responsive care within clinical trials.
Advising on the alignment of research priorities with distinctions-based Indigenous health needs.
Upholding principles of respect, inclusivity, and reciprocity in all interactions.
Structure and Accountability:
Under the leadership of co-chairs from the University of Alberta and the First Nations Health and Social Secretariat of Manitoba, the Council meets regularly to discuss and advise on strategic initiatives. Meetings prioritize respectful dialogue and consensus-building, ensuring all voices are heard and valued.
Membership and Engagement:
The Council includes Elders representing First Nations, Inuit, and Métis communities, ensuring diverse perspectives inform decision-making. Members commit to attending both in-person and virtual meetings throughout the year, facilitated by modern technologies to overcome geographic barriers.
Conclusion
The Grandmother's Council stands as a beacon of Indigenous wisdom within the ACT Consortium, embedding cultural integrity and ethical responsibility into clinical trial research. Through their guidance, the Committee fosters equitable health outcomes and strengthens partnerships with Indigenous communities, reflecting a commitment to Avattimik Kamatsiarniq, Miyeu Waahkooyoowin, Wahkohtowin, and Bizindan & Weweni Anookiiwin principles.
This summary highlights the Grandmother's Council's integral role in advancing Indigenous health initiatives within the ACT Consortium, ensuring that research respects and reflects the values and priorities of Indigenous Peoples across Canada.
Grandmother's Council Meeting Schedule
November 13/23
Winnipeg, MB
January 11/24
Edmonton, AB
May 2-3/24
Vancouver, BC
September 24-25/24
Winnipeg, MB
January 9-10, 2025
Winnipeg, MB
March 31, 2025
Virtual
September 10-11, 2025
Edmonton, AB
National Gathering on Indigenous Clinical Trials
March 23-24, 2026
Edmonton