2013

January 2013

• Students Health Forum at Aldersgate College in Solano, Nueva Vizcaya by Jaymar Mason

• Students Health Forum at Saint Mary’s University Bayombong, Nueva Vizcaya by Jaymar Mason

• Conduct of a seminar on Newborn Screening for midwives, barangay health workers, and pregnant women at San Quintin, Pangasinan by Leo Macalanda

• Conduct of the “Care for Rare Symposium” by the volunteers from the Mapua Institute of Technology – Makati Campus

• Presentation of the Folic Acid Awareness Campaign and Newborn Screening lecture at the 8th Genetics Camp for high school students and faculty members conducted by The UPLB Genetics Society, UPLB

• Booth set-up and distribution of VYLH-Philippines information and education campaign materials during the 2013 Gandingan Awards by VYLH UP Los Baños

• Participation in the Reunion of Saved Babies in Bohol.

• Distribution of brochures, signature campaign and exhibit during the WVSU Student Org Fest.

• Distribution of IEC materials (NBS, Folic Acid and PSOD pamphlets) to different barangays in Toledo City, to mothers who are having their prenatal visits and during immunization schedule.

• Signature campaign for Rare Disease Act participated by the government employees from different departments in Toledo City, Cebu.

• Planning for February activities. by VYLH Cebu Chapter- Jane Alcomendras, Christian Emmanuel Enriquez, Renee Joyce Tan, Mahana Aprile Estrera, Cindy Pao and Luigi Chan

• Barangay Health Center Advocay Dissemination (Distribution of NBS posters, pink and folic acid brochures) at Poblacion I and III, Tagbilaran City, Bohol.

• Distribution of brochures at Bgy. Jibao-an, Pavia, Iloilo.

February

• Integrated Advocacy on Early Pregnancy/NBS/Folic Acid/Birth defects/STI/HIV and dengue at Geographically Isolated and Disadvantaged (GIDA) Areas, namely Barangay Sumile, Maguinda, and Bilay covering all high school students by Caraga NBS Team

• Distribution of IEC materials (leaflets and tarpaulins) to 4 BEmONC facilities and 14 birthing clinics of the City Health Office of Butuan by Anthony Torralba, Julius Gulde, and Zaldy Fajardo

• Audio Visual presentation of advocacy videos on newborn screening and orphan disorders at Southern Philippines Medical Center lobby and OPD area from 9:00 am to 4:00 pm during the 4th Rare Disease Awareness Week by VYLH – Region XI

• Conduct of an orientation about the VYLH-Philippines advocacies for student organizations based at the Institute of Biology, UP Diliman by Ryan John Pascual, France Bartolata

• Distribution of Newborn Screening brochures at the AFP Medical Center – Nuerology Ward (7A) by volunteers from the Mapua Institute of Technology – Makati Campus

• Conduct of a symposium on newborn screening at the College of Nursing, Bicol University by Revie Tindugan and Christine Domasig

• Participation to the SM Mall of Asia Globa Photo-shoot organized by the PSOD

• Participation to the “Wear that you care/Blue Jeans campaign” by VYLH-Philippines volunteers and Institute of Human Genetics Staff

• Participation of LGU – Tandag City for the Global Rare Disease Awareness Week, “Wear that you Care Campaign” and Brochure Distribution by Vincent Khen Mendez

• PSOD Signature Campaign, Brochure Distribution and Information Dissemination among students of Central Mindanao University during the 4th Rare Disease Awareness Week by Samuel Vincent Caro and Ferlin Grace Gurro

• Radio plugging for Rare Disease Awareness Week and airing of PSOD’s theme song “Lalaban Kami” at Radyoni Juan News andInformation Center, Bajada, Davao CitybyLouigie Jeb Saludar

• Signature Campaign and Denim Ribbon Distribution during the Rare Disease Day at SPMC – OPD, JICA Building by VYLH – Region XI

• University-wide participation of medical students in Xavier University for the Rare Disease Day, “Wear that You Care Campaign” and Brochure Distribution by VYLH – Region X

• Incorporation of VYLH advocacies during the Leadership seminar at St. Robert's International Academy.

• Meeting and Bracelet w/ Denim ribbon-making at Ayala Center, Cebu. by Jane Alcomendras, Christian Emmanuel Enriquez, Mahana Aprile Estrera and Renee Joyce Tan

• "Wear that You Care Campaign" (Iloilo City, Cebu City, Bacolod City, Dumaguete City).

• "Jam for Life 2" - concert for a cause at Robinson's Place Dumaguete for the support of children with Rare diseases.

• "Rare Disease Month Celebration"-themed bulletin board at the University of San Carlos College of Nursing .

• VYLH event at Bohol Island Mall - an interactive Talk on Saving Babies from mental retardation through newborn screening

• Meeting, briefing and finalizing with the VYLH Challenge Seminar at Ayala Center, Cebu. by Jane Alcomendras, Luigi Chan and Southwestern University- College of Nursing student body board of directors

• VYLH Challenge Seminar at Southwestern University Campus (Cebu) participated by the Nursing students- Levels 1-3. by Jane Alcomendras, Cindy Pao, Luigi Chan, Christian Emmanuel Enriquez, Myra Leonora Salvaleon, Dr. Barbie Cavan

March

• Distribution of VYLH-Philippines advocacy materials during the Buntis Day Celebration organized by POGS-NCR held at Robinson’s Otis by Ryan Pascual, Rufus Adducul, Elmer Palomeno, Revie Tindugan

• Passage of a Municipal Resolution adapting the newborn screening and folic acid supplementation advocacies in the conduct of the Parada ng Buntis in the Municipality of San Mateo, Isabela through the office of Councilor August Gamboa

• Passage of a Municipal Resolution adapting the newborn screening and folic acid supplementation advocacies in the conduct of the Parada ng Buntis in the Municipality of Luna, Isabela through the office of Councilor Adrian Tio

• Newborn Screening Lecture and Distribution of Pink Brochures among mothers during a regular immunization day by Louigie Jeb Saludar

• House-to-house signature campaign for the Rare Disease Act of the Philippines among residents of BarangaySibajay, Boston, Davao del Norte by Louigie Jeb Saludar

• Installation of PSOD tarpaulin and turning over of 200 pink and 100 Folic Acid Brochures in Barangay Lamiawan Health Center, Caraga, Davao City by Lougie Jeb Saludar

• Newborn Screening Advocacy through Medical Outreach Mission and Free Newborn Screening certificates to 25 expectant mothers of Butuan City by VYLH – Butuan

• Participation in the Rare Disease Group Meeting (Visayas) in Cebu DOH-CHD- Region 7 conducted by PSOD and participated by invited parents from the Visayas Parent’s Support Group with their children, Dr. Barbra Cavan- Region 6,7,and 8 Geneticist Dr. Entera and Myra Salvaleon - NBS Coordinators and VYLH Cebu Chapter Representatives: Jane Alcomendras and Cindy Pao.

• Distribution of brochures during the Buntis Day Celebration at SM City Iloilo and during the MDNA Candle Lighting Ceremony at Negros Oriental State University, Negros Oriental.

• Distribution of brochures and posters during the OB Mission of the College of Medicine, West Visayas State University, Iloilo City.

April

• Participation to the “Working Together to Care for Rare” Family Forum with PSOD and the Inner Wheel Clubs of the Philippines held at San Antonio Village Makati City by Romer Guerbo, John Constantino, Rufus Adducul and Christine Querubin

• Distribution of pink and folic acid brochures and nbs posters during the Iloilo Doctors' College-College of Medicine community activity at Sta. Barbara, Iloilo.

May

• Participation the Osteogenesis Imperfecta Support group activity for the International Wishbone Day held at SM Marikina

• VYLH Participation during the Fun Run for Newborn Screening Awareness at Bukidnon Provincial Hospital – Maramag, Bukidnon by Aple Dowanie Tadlas, Romer Guerbo

• Committee meeting for Strategic Plan on Newborn Screening Program among staff and NBS team members of Valencia Sanitarium Hospital by Robin Charles Ramos

• Participation in the PSOD 1st Family Forum at Velez College, Cebu City.

• Distribution of brochures during the Journalism Workshop and Leadership Training at Alimodian, Iloilo.

• Sharing of VYLH experiences and distribution of 25 pink brochures during the In-Service Training of teachers at St. Catherine Parochial School. by Reyjean Porras

• Distribution of 200 pink and 200 blue brochures & signing of petition sheets during the implementation of "A Plant, A Bottle & A Song" BYEE project in the several Barangays (Tawog, Pob. Sur, Pob. Norte, Parian, Guintas, Dayhagon, Amaga) of Sigma, Capiz.

June

• Batch I VYLH Advocacy Orientation and Training of Trainers for Counseling among members of the Newborn Screening Team in Valencia Sanitarium Hospital, Valencia City by Robin Charles Ramos

• Participated on the Planning stage of the City Investment Plan for Health 2014 – 2016 including the Newborn Screening Program and Folic Acid Supplementation with Butuan City Health Officer at CHO – Butuanby VYLH – Caraga

• Batch II VYLH orientation and training for Newborn Screening advocacies among nurses and hospital staffs at Valencia Sanitarium Hospital Inc. by Robin Charles Ramos

• VYLH-Philippines NCR-South Luzon Cluster and Skype Meeting

July

• Celebration of the Fourth Founding Anniversary of VYLH-Philippines (VYLH Day 2014)

• Distribution of advocacy campaign stickers and brochures to UPLB Students by The UPLB Genetics Society

• Conduct of a Newborn Screening and Folic Acid Supplementation Campaign Lecture during the Medical Mission of The UPLB Genetics Society at Barangay Bagong Silang, Los Baños, Laguna by Veronica Page Chavez, Gessa Ramos, The UPLB Genetics Society

• VSH – NBS Program Launching and creation of the hospital-based organization (NBS Team of Valencia Sanitarium and Hospital Foundation, Inc./ VYLH – Philippines Mindanao Cluster VSH chapter) by Robin Charles Ramos

• Newborn Screening Awareness Day every Friday at Valencia Sanitarium and Hospital, Foundation, Inc. by Robin Charles Ramos

• Courtesy Meeting and NBS Activity Proposal with CHD – XI Nurse Coordinator Ms. Clarose Mercado at CHD – XI by Louigie Jeb Saludar

• VYLH 4th Year Anniversary Celebration at Bo’s Coffee, SM Lanang, Davao City byVYLH Mindanao Leaders

• Selected VYLH, Peer Educators and RN Heals (also known as CHO Angels) rendered a special dance presentation and danced back-up toASec. Enrique Tayag during the Launching of the Pneumococcal Vaccine at Dotties Place Hotel and Convention Center by Anthony Torralba, Julius Gulde, Zaldy Fajardo, AnmarkOrosia, JoselouBalili, Jay Anthony Torotoro, and John Paul Piezas

• VYLH, featured at the RTRMF PACEMAKER, the official publication of the school, vol. 1 SY 2013-2014. Reaching hundreds of students (colleges and post graduates) in sharing its passion and advocacy.

• Sharing of VYLH experiences and distribution of 100 pink brochures to the participants during the Journalism Workshop at Colegio de las Hijas de Jesus. by Reyjean Porras

• Distribution of 30 pink brochures during the Leadership Training led by Reyjean Porras at Angelicum School Iloilo.

August

• Conduct of an orientation for UP Diliman Student organizations held at the Institute of Biology, UP Diliman by Gina Valera, Alexei Flores, Ryan Pascual, Francia Bartolata

• Distribution of VYLH-Philippines advocacy materials during the Mu Sigma Phi Fraternity’s “Health Living from Womb to Tomb” A Continuing Medical Education Conference at the Manila Diamond Hotel, Manila by Ryan Pascual, Rufus Adducul and Francia Bartolata

• Booth set-up and brochure distribution during the UPM Department of Behavioral Studies Foundation Week by Danna Chavez

• Volunteer Youth Leaders for Health – Philippines Mindanao cluster orientation on VYLH and VYLH advocacies at Mountain View College, Valencia City by Plendy Catalan and Robin Charles Ramos

• Newborn Screening advocacies with IEC dissemination and implementation of the “Pink Campaign” during the Nurse Licensure examination review class for Fundamentals of Nursing at St. Louis Review Center – Zamboanga City by Mark Ray Espinoza

• Integration of Newborn Screening advocacies with IEC dissemination and implementation of the “Pink Campaign” during the Nurse Licensure Examination review class for Pediatric Nursing at Brent Hospital and Colleges Inc., Zamboanga City by Mark Ray Espinoza

• G6PD Forum: What Parent’s Should Know, in collaboration with City Health Office of Valencia City at Valencia Sanitarium Hospital Inc.by Robin Charles Ramos

• Participation in PSOD's "Rare Moments at SM Storyland Photo Exhibit", Cebu

• Ride-on Campaign at Bo.Isiong Sta.Cruz Nuevo, Tanjay City, Negros Oriental for NBS, Folic Acid and NTD with 4P'S Members.

• Distribution of 150 NBS and 150 FAS Brochures to the participants of the School-Based Leadership Training and Team Building of Esteban S. Javellana Memorial High School (ESJMHS) at Guiso, Calinog, Iloilo

September

• Representation to the 2nd Asia-Pacific Emerging Leaders Conference organized by the World Youth Alliance – Asia Pacific by Ryan Pascual

• Booth set-up and distribution of VYLH advocacy materials during the National Intercollegiate Genetics Quiz Contest by Gessa Ramos, The UPLB Genetics Society

• Distribution of VYLH-Philippines advocacy materials during the National Convention of the Philippine Society for Developmental Biology at the College of Science Auditorium, UP Diliman by Ryan Pascual

• Booth Set-up and distribution of VYLH advocacy materials during the Buntis Day held at Golden Gates, Lipa, Batangas by Elaine Dimayuga

• Lecture on VYLH-Philippines advocacies during the medical mission in Bulacan organized by the UP Pre-Medical Honor Society by Francia Bartolata

• Promotion of Newborn Screening during the BIO 139 Human Genetics Exhibit which included a tour to visiting high school teachers and students

• Presentation of VYLH-Philippines advocacies to the youth of Talubatub Norte IEMELIF Church (TNIC Youth), Nueva Ecija by Robin Albinto and Israel Marquez

• Integration of Newborn Screening advocacies with IEC dissemination and implementation of the “Pink Campaign” during the midwifery review class for Infant Care and Feeding at St. Louis Review Center – Cagayan de Oro City by Mark Ray Espinoza

• Newborn Screening Moment (conducting the NBS test) with Julie Torrigue and her baby boy at VSH by Robin Charles Ramos

• AVP showing of NBS Videos and testimonials at SPMC Lobby from 9:00am to 3:00 pm in observance of the National Newborn Screening Week Celebration 2013 by VYLH – Region XI

October

• Celebration of the National Newborn Screening Week 2013

• Attendance and representation to the National Newborn Screening Convention held at the Manila Hotel by Romer Guerbo and Jasper Jover

• Re-echo of the Expanded Newborn Screening Program by Jasper Jover and Cluster Meeting and Planning Session for NCR-South Luzon

• Facilitation of the online Social Media Campaign by Ryan Pascual and Christine Querubin

• Distribution of VYLH-Philippines brochure at Avalon Edunet Plus by Christine Querubin

• Assistance to the organizing committee of the Newborn Screening Awards organized by the Newborn Screening Center – NIH and CHD NBS coordinators by Christine Querubin

• Distribution of pink brochures at the Central Luzon State University Hospital by Leo Macalanda

• Collaboration with the Barangay Health Worker of Talabutab Norte, General Mamerto Natividad, Nueva Ecija and conduct of a seminar on how to disseminate information and educate mothers about the importance of newborn screening and folic acid supplementation in the community by Robin Albinto and Israel Marquez

• Distributed leaflets and conducted orientation during the kick-off activities for the children’s month celebration at City Hall Ground by VYLH – Caraga

• Newborn Screening Awareness Week 2013 at Valencia Sanitarium and Hospital, Foundation, Inc. by Robin Charles Ramos

• Week-long lecture and orientation for NBS Awareness, Folic Acid Supplementation and Signature Campaign for the lobbying of Rare Disease Act of the Philippines at OB Ward, SPMC Lobby, OB – OPD Jica Building by Aple Tadlas, Maria Katrina Gurro, and Louigie Jeb Saludar

• Installation of Newborn Screening Tarpaulins at the premises of Southern Philippines Medical Center, Bajada, Davao City by ApleTadlas and Maria Katrina Gurro

• Printed advertisement materials at an electronic billboard for IEC within the intersection of JC Aquino Avenue by VYLH – Caraga

• Radio guesting at the local radio station, "Radyo ni Juan" AM station, at Bajada, Davao City, featuring the celebration of the “National Newborn Screening Awareness Week 2013” by Louigie Jeb Saludar

• Radio guesting at the local radio station, “RadyoRapido” AM station, at Damosa, Davao City by Aple Dowannie Tadlas

• Newborn Screening Quiz Bowl at Valencia Sanitarium andHospital Inc., Valencia City by Robin Charles Ramos

• Newborn Screening Lecture at CHO – Valencia by Robin Charles Ramos

• NBS Campaign at OB Wards of Valencia Sanitarium andHospital Inc., Valencia City during the Newborn Screening Hour in celebration with the Newborn Screening Week by Robin Charles Ramos

• NBS Campaign and Pink Brochure Distribution among students of Ramon Magsaysay Memorial Colleges, General Santos City during the Newborn Screening Hour in celebration with the Newborn Screening Week by Franklin Boctoc Subi-subilang

• Pink Brochure Distribution among teachers and students of E&G English Academy, Maryknoll St., Bo. Pampanga, Davao City during the Newborn Screening Hour in celebration with the Newborn Screening Week by Shane Paul Baula

• Newborn Screening lecture among mothers of BarangayAwasian, Tandag City during the Newborn Screening Hour in celebration with the Newborn Screening Week by Vincent Mendez

• Distribution of Pink Brochures among students of Mountain View College, Valencia Cityduring the Newborn Screening Hour in celebration with the Newborn Screening Week by Plendy Catalan

• Health Education orientation, pink brochure distribution and signature campaign during Convocation Program at Davao City Hall during the Newborn Screening Hour in celebration with the Newborn Screening Week

• Pink brochure distribution among staff and personnel of City Social Services andDevelopment Officeduring the Newborn Screening Hour in celebration with the Newborn Screening Week by Louigie Jeb Saludar

• House-to-house distribution of pink brochures and newborn screening awareness among residents of BarangayAwasian, Tandag City by Vincent Mendez

• NBS Week Celebration: "Importance of Youth Participation in Health Advocacy; Newborn Screening" during the SK Bacolod Youth Forum. by Israel Salanga

• NBS Week Celebration: NBS interview at Negros Daily Bulletin Newspaper.

NBS Week Celebration: Live NBS interview at Love Radio 91.9 Bacolod.