6th International Conference on
Birth Defects and Disabilities
in the Developing World
November 10-13, 2013
Mactan, Philippines
OFFICIAL BLOG

 Advocacy in Focus: Folic Acid Awareness Campaign



Give your baby the best chance to live

by being health through good nutrition.
Even if you are planning to get pregnant,
you should take folic acid now, and
save your children from birth defects.

Know more of the Folic Acid Awareness Campaign
.



Video developed by GoFolicUK.

Lobbying for Public Support for Rare Disorders


5th National Rare Disease Week and 
7th International Rare Disease Day 
CARE. Join Together for Better Care
24-28 February 2014

"We are fully aware that we have more patients with diarrhea, pneumonia and tuberculosis but we cannot close our eyes to these kids who have rare conditions."

Dr. Carmecita D. Padilla
Founding Chairman,
Philippine Society for Orphan Disorders
National Program Adviser,
Volunteer Youth Leaders for Health - Philippines
Executive Director, Philippine Genome Center

Update on National Newborn Screening Coverage
ABOUT US

VYLH-Philippines is a network of pro-active, service-oriented, empowering, and visionary leaders equipped with knowledge and skills in mobilizing the youth towards a healthy Philippines.

The Volunteers Youth Leaders for Health – Philippines (VYLH-Philippines) is a national collaboration of youth leaders of youth organizations in universities and communities in the Philippines. This novel undertaking is part of an international effort to establish the March of Dimes - Global Network for Maternal and Infant Health (GNMIH) participated by youth counterparts in China and Lebanon linked by the common interest of volunteerism and public service, to improve birth outcomes worldwide through advocacy. View the VYLH-Philippines Primer


Our Advocacies: In Brief


Increasing awareness among women in their reproductive age on the significance of folic acid supplementation in the prevention of birth defects;

Increasing public awareness in saving babies from mental retardation and death through newborn screening; and

Lobbying public support for the urgent passage of the Rare Disease Act - an act addressing the needs of patients with rare or orphan disorders.



VYLH CALENDAR

National Rare Disease Week
Pres. Proc. 1989 S. 2010
PSOD
Last Week of February
International Rare Disease Day
International Event
EURORDIS
Last Day of February
International Women's Month
International Event
March, Month-long
National Buntis Day
Pres. Proc. 569 S. 2004
DOH, POGS
10 March
World Health Day
International Event
WHO
7 April
VYLH-Philippines
Founding Anniversary

VYLH-Philippines National
18 July
National Nutrition Month
July 2012, Month-long
DOH, DepEd, DA, NNC
Nationwide
National Disability Prevention and Rehabilitation Week
Pres. Proc. 1870 s. 1979
DOH, NCDA
Third Week of July
International Youth Day
International Event (UN)
12 August
World Humanitarian Day
International event (UN)
19 August
Universal Children's Month
National Children's Month
Pres. Proc. 267 S. 1993
DOH, DILG
October, Month-long
National Newborn
Screening Week
Pres. Proc. 540 S. 2004
DOH, NSCs, NSRC
First Week of October
National Health
Education Week
Pres. Proc. 225 s. 1997
DOH, DepEd
Third Week of October
World Prematurity Day
International Event (MOD)
17 November
National Volunteers Month
Pres. Proc. 55 S. 1998
PNVSCA
December, Month-long
International
Volunteers Day
International Event (UN)
5 December
National Youth Health Day
Pres. Proc. 99 S. 1992
DOH
10 December