・学会・研究機関
Movement Disorder Society of Japan
National Institute of Neurological Disorders and Stroke
BCM Parkinson's Disease Center and Movement Disorders Clinic
・患者の会
Dystonia Medical Research Foundation
Bachmann-Strauss Dystonia & Parkinson Foundation
Benign Essential Blepharospasm Research Foundation (BEBRF)
National Spasmodic Torticollis Association (NSTA)
Spasmodic Torticollis/Dystonia, Inc.
Action for Dystonia, Diagnosis, Education and Research (ADDER)
Australian Spasmodic Torticollis Association
Deutsche Dystonie Gesellschaft e.V.
Bundesverband Torticollis e. V.
Österreichische Dystonie Gesellschaft
Schweizerische Dystonie-Gesellschaft
Association de Malades atteints de Dystonie (AMADYS)
Asociación de Lucha contra la Distonia en España (ALDE)
Associazione Italiana per la Ricerca sulla Distonia (ARD)
Associacao Brasileira dos Portadores de Distonias
Associação Portuguesa de Distonia
Nederlandse Vereniging van Dystoniepatiënten