Patient and Public Involvement and Engagement (PPIE)

PPIE Study Groups

We are very grateful to our PPIE advisors who are involved with this study. Our advisors have a wide range of expertise by experience. This include experiences as people living in care homes, family and friends of care home residents, professionals in health and social care and those with experience supporting emergency and healthcare research.

Over the life of the study, our PPIE groups are advising on:

1) Making sure study information is clear and understandable.

2) Designing interviews and helping understand what they mean.

3) Helping decide how what we find out is used by the NHS.

4) Help share what we find out.

We are working with the following groups:

Alexander Court Care Home
Sheffield Emergency Care Forum (SECF)
Health Data Research (HDR UK)
Nurturing Innovation in Care Home Excellence (Niche) Leeds, Family and Friends Panel
Darnall Dementia Group

Lynsey Button

I am currently the Day Centre manager at Darnall Dementia Group.

I have extensive experience of working and visiting care homes. I am passionate about promoting the highest standards of care for people living in care home settings.

Emily Lam

I am a retired British Chinese living with several chronic health conditions in a rural part of Cheshire. Before my retirement I had a long career in nursing across primary care and various specialities in hospitals. During that time, I studied for an Open University degree and also worked as a senior nurse in research and development for a few years. After retirement, I set up and ran an education recruitment business for fourteen years.

Then I participated as an Expert By Experience in many Care Quality Commission inspections until the pandemic struck. The work took me to hospitals, care homes and GP surgeries across the region to interview patients and carers, and led me to take a keen interest in the value of people’s insights and experience, especially those from deprived communities. I hope that by sharing my insights and experience I can contribute to the ongoing research and development of healthcare professionals so they become more thoughtful and skilled in their work.

Hilary Garrett

Hilary has been a Public Contributor to Health and Social Care research since 2020. Her reasons to be involved come from her life experiences, over many years, as a patient and as a carer for loved ones. She has a strong a sense of the injustice felt by many people who can’t easily access high quality care or maintain good health due to social and economic barriers. She believes good research is the starting point to bring change for the good of everyone.

Peter Lloyd

Peter is a former Professor of Geography and Dean, and remains an active researcher and writer in retirement. Peter joined Collaboration for Leadership in Applied Health Research (CLAHRC) and the National Institute for Health and Care Research Applied Research Centre Northwest Coast (NIHR ARC NWC) as a Public Advisor while caring for a wife with dementia. Peter has almost a decade of intensive involvement in PPIE for health and social care.

Linda Abouzied

I have been a member of SECF (Sheffield Emergency Care Forum secf.org.uk), for over ten years and I took over as a lay coordinator of the group about five years ago. I have attended a number of PPI training courses and been involved in a variety of studies, both on Project Management Groups and as co-applicant. I strongly believe that the patient and public voice can add considerably to health research.

Diana Charles

Before retirement I had worked in schools & adult education colleges as a teacher, at the Sheffield Children's Hospital as the voluntary work co-ordinator & for an advocacy charity supporting people with learning disabilities. I became active in patient & public involvement some years ago, firstly with the precursors of Healthwatch England - the Sheffield Patient & Public (PPI) forum, then the Local Involvement Network (LINks) - before being recruited into the Sheffield Emergency Care Forum, which group I joined 10 years ago.

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