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We define public involvement in research as being research that is carried out with or by members of the public, rather than something that is done to, about or for them.
What is PPIE?
What is PPIE?
We define public involvement in research as being research that is carried out with or by members of the public, rather than something that is done to, about or for them.
This is an active partnership between patients and the public and researchers in the research process; different to taking part in a study as a participant.
The involvement of patients and carers is vitally important in making sure our activities are relevant to the people our research affects.
At every stage of the research cycle, from helping to decide what is an important research question, to how best we can carry out that research, and how we communicate the results, patient and public involvement helps to improve research quality and accessibility.
What help can the BRC provide?
What help can the BRC provide?
Help with initial PPIE planning
Funding application advice
Signposting to PPIE groups
Communications materials
Funding support for small PPIE activities via the rolling PPIE call
Support for running events
Who do I contact?
Who do I contact?
The NIHR Sheffield BRC PPIE Officer
Grace Edwards
email: grace.edwards2@nhs.net
Grace is on hand to provide advice and support for PPIE activities across the BRC. Please get in touch with her to discuss any ideas or funding requests.
Do I need to cost for PPIE involvement?
Do I need to cost for PPIE involvement?
Our researchers are welcome to access any of the groups listed below for free, as they already have funding in place for their members’ time. Any additional involvement will require costing into your grant applications. For this, we recommend first visiting Payment guidance for researchers and professionals and then using the NIHR involvement costing calculator.
NIHR Sheffield BRC also offer small grants for PPIE activity through the BRC rolling call for PPIE initiatives. For further information, please contact grace.edwards2@nhs.net.
Top tips on planning your budget
Top tips on planning your budget
Involving people in research usually requires resources in the form of time and money. It is really important to account for the costs of involvement at the earliest stage possible; without having these resources available you will struggle to effectively involve people.
If you are applying for funding, check if the funder has an involvement policy or guidance notes on budgeting or finance. Note that they will be looking for value for money.
Ask the questions: ‘am I doing my patient and public involvement properly?’ and ‘am I really accounting for all the costs that might be incurred?’ to ensure that the true cost of involvement activities is accounted for at the project outset.
Remember that it is important not to under-estimate costs when budgeting for involvement activities.
Are there any online resources I can access?
Are there any online resources I can access?
Patient and Public Involvement and Engagement Planner
Developed by NIHR Newcastle BRC, this digital tool can help you embed PPIE activities into your projects at all stages of the research cycle. The questions asked in this planner are all the types of questions a PPIE professional would pose to a researcher to help them develop the best possible PPIE plans.
Our Local Research Advisory Groups
If you are interested in bringing your research ideas, study documents, grant applications or approved projects to an advisory group for discussion and feedback, reach out to the relevant group by clicking the links to the right.
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