Patient & Public Involvement & Engagement (PPIE)

What is PPIE? 

• We define public involvement in research as being research that is carried out with or by members of the public, rather than something that is done to, about or for them.

• This is an active partnership between patients and the public and researchers in the research process; different to taking part in a study as a participant. 

• The involvement of patients and carers is vitally important in making sure our activities are relevant to the people our research affects. 

• At every stage of the research cycle, from helping to decide what is an important research question, to how best we can carry out that research, and how we communicate the results, patient and public involvement helps to improve research quality and accessibility. 

A course for reviewers of health and social care research (learningforinvolvement.org.uk) 

The course covers reviewing in all contexts for NIHR research funding programmes, plus skills and activities required at different levels and stages of research. It is designed for public contributors who are committee members as well as public reviewers.

Researchers may also find this resource useful when writing research funding applications. It can be used as a tool to understand how to get your Patient and Public Involvement right first time!