Twisted tremors both arms and both knees,

I’m all shook up with Parkinson’s disease

I can’t go quick I’m slow like a snail,

I’m stiff as a poker clumsy and frail.

Tablets and patches throughout each day, imagining images that won’t go away

My Parkinson's symptoms are worse

And I struggle to open my purse

If you are behind me one day

Them I'd just like to say

Be patient and hold back that curse!

I've had twenty four years with PD

but it also must put up with me.

In its way it's a blessing

I don't mind confessing

without it I wouldn't be 'me'.

Oh Mr Parkinson, whatever did you find?

a mean, insidious creature plots taking over my mind

but I won't let it win

with it's nightmarish grin

if I'd stopped laughing I sure would have cried

Its a matter that's so close to me

Parkinson’s and my Daddy

He has suffered for years

And as his health disappears

Of this disease he'll never be free

There was an old man from Kent

A refined and upstanding gent

Diagnosed with PD

Now his legs are wobbly

From this awful disease he was sent!

You’re still the same man as before

the day Parkinson’s knocked at your door.

With a rhyme here and there

We’re all here to share

Our limericks both fabulous and poor!

Awake in the night with my Parkinson’s fight

I’m no longer dreaming because my leg is screaming,

So let’s take another pill and hope to be still,

Gradually I drift away & prepare for a new day,

Now it’s morning I arise with hope, but so too does Parky that little dope..

No longer drive, so use the bus

Used to do this without fuss

Now I'm nervous when alighting

Going upstairs can be frightening

When I'm lurching all over the place

Do they think I'm a public disgrace?

I'm not sure they all see

It's not booze but PD

That makes me appear off my face.

Your still my dad,

Parkinson’s always makes you look so sad,

A smile now missing and shuffling a tad,

The simplest task making you quite mad,

Don’t worry you’re still my dad!

It's a little shiver, then a shake,

it creeps quietly and silently, moving through the night,

then the day breaks and I awake,

can this be true, can this be me,

how will the rest of life be.

This monster PD takes a huge toll,

As the body shakes, pitches and rolls.

And try as we might,

it’s still such a fright,

As terror consumes mind and soul.

The beautiful hand

Having held, having healed

And thrice cradled,

Now takes its leave of us and dances, unbidden,

An endless partita

There was a woman called Kate

Who was always tremendously late

She blamed her condition

but her mates shouted repetition

and bought her some skates and now her condition has gone into remission

If I fall I may not be drunk

If I close my eyes I may not be sleeping

Just give me more time to do everything including speaking

Then forgive my lack of eloquence

And just ignore my slobbering

Once I knew what it was it was kind of a relief,

but nevertheless it had come to give me grief,

these things are sent to try us

as my Great Gran used to say,

so I’ll just keep taking the tablets and enjoy life every day!

Young and fun my mum,

Parkinson’s took over,

Still Young and fun,

If only it was me suffering,

Because you could mother me,

Still young and fun, My mum.

Parkinsons isn't a breeze

A common but complex disease.

Slowness and rigidity,

Tremor and debility

Let's find a real cure, not a tease.

They say I've got a P D

What does it mean to me

I'm confused and bemused

Feeling badly abused

By the Fates and society.

It's not time to shuffle off this mortal coil,

Though shuffling has become part of my days,

Parkinsons has changed my life

in oh so many ways.

I'll shuffle on and find new ways....to live!

I was diagnosed with parkinsons at 72

And I asked myself what am I to do ?

Things are ok on the whole

Because my Parky is under control

And at least I am able to Rock and Roll 🤣🤣

I try not to moan, I know it's here to stay

But I wish for a cure to make it go away

I will try to live my life

To the full every day

Thanking my family for their support all the way.

My Grandma had Parkinson's disease,

But she always cracked a joke with ease,

Over the years her voice started to shake,

When people missed the punchline

my heart would break.

It started with a shake dear

Ended with heartbreak - rare

I can feel you’re still here

Each day I fight back the tears

Wishing for your voice to hear.

It comes in waves

One minute, I’m happy you’re not suffering

Another, I’m sad cause I am

The sadness, angry, confusion, hurt

It all comes in waves. Here it comes

My Dad, my Super Hero

Some days are "on"

Some days are "off"

But live to the full he will

Celebrating together all days "on"

I rarely sleep I toss and I turn

There are things I can’t do or learn

But despite the above

My life is filled with love

Which makes PD of little concern

Caring for our mum is tough

Her Parkinsons makes life so rough

Watching her struggle to walk

There needs to be

much more support

As Physiotherapists, we help you day to day,

To those people with Parkinson’s, have your say,

To improve balance, confidence and how you walk,

We work together, we talk,

To achieve your goals and feel better.

I wish I had a crystal ball

Then I could predict when we’d cure you all

But for now until that day

Drink plenty and exercise,

is what I say

Tablet taking can feel like a chore

But they’ll make you feel better, that’s what they’re for!

Any advice from Parkinson’s UK

Might just help

to make your day

A kind man

Fidgeting statue

Wanting to communicate

But, confused, I’d run

And get Nan

Parkinson's Parkinson's go away

Stop me from shaking for just one day.

I can sing and dance

have a drink or two.

That's all I ask of you

It makes me very sleepy

That I will admit

So I try to keep on moving

Cos I’ll sleep here

If I sit

I look so sad & troubled

My happy face no more

Folks ask me if I’m ok

And I tell them to ignore

And smile at them to reassure

Once upon a time i decided to write a rhyme

About how I feel about this awful pd

Cause it’s getting a hold of me

It makes you feel scared, frail and weak

It’s certainly not a Illness for the meek

On the nights I cannot sleep, I have to ask

Do I wear the Parkinson’s mask

I thought I’d got away with it

But caught a sideways glimpse of me

And I’m afraid it’s true I have pd

You won't see me on Strictly on telly.

My Parkinson's legs are like jelly.,

But ambition's not dead!

I'll write poetry instead!

Lik3 Shakespeare or Percy Bysshe Shelley! !???

Diagnosed with PD, here it comes.

Causing 40 different symptoms.

Pain, stiffness, trembles and shakes.

Not sure what form, on you it will take.

The speed this condition grows in the world. Needs our work, needs to be curbed.

Diagnosed, your world changes forever

Coping with symptoms each one as it arises

Embarrassed. Have they noticed? Do I tell?

A challenge. Help find a cue. Life to the full

It is what it is. Get on with it.

There was a young man from Belize.

Who started with Parkinson’s Disease.

He started to shiver,

His legs they did quiver,

Til his underpants fell past his knees.

It’s a funny old world, don’t I know it

I have Parkinson’s and boy can I show it

When my drugs work well

I bet no-one can tell

When the dose doesn’t work I think blow it

"I'm sorry you have Parkinson's,”

The words you dread to hear.

“I’m sorry I can’t help you,

There is no cure my dear.”

And now it's been eighteen long years.

I was once a woman who could walk and write,

Socialise confidently and stand upright.

Dignity lost but resolve still strong,

Stuck in a body where I don’t belong,

Parkinson’s won’t take me without a fight.

Is it tremor or is it shiver

Those who see me struggle to think

They think I am drunk when I can’t even drink

Dribbling and Drooling I struggle to eat

I struggle to say it but no one can wait !

Tiredness and Trembling, try to wake up

Mumble and Mutter, try to speak up

Steps and Stairs, try to climb up

Shuffle and Shake, try to keep up

Stiffness and Sadness, try to perk up

I may walk like a drunk

I may talk like a drunk

But please remember, I may not be

Drunk

- This time

They think you first got it at fifty,

But your work kept your body quite nifty,

You have DBS,

And some symptoms are less,

Now Dementia... Err... I forgot.

We are the Parkinson’s Nurses

We see you in many different places

In outpatients we listen

Your welfare’s our mission

So follow our guidance today!

Gladiator is my role.

The daily battle rages.

My heads not down.

True courage found.

To fight each of Ps stages.

My Husband Ronald (to some he’s Ron),

Is my whole world and second to none,

Though Parkinson’s takes,

With its stiffness and shakes,

His keeps calm and just carries on!

Grandad used to do so much,

And always had a gentle touch.

Parkinsons came and changed him,

Till he could barely move a limb.

Now, over the rainbow Grandad went ❤️🕊

Parky and Stress are the best of friends,

Each helps the other achieve wicked ends.

How does one thwart

such a terrible two?

Ha! They’ve clearly not heard of Super You!

Back when I was able to dance

I was invited to France,

But now that I can't,

they'll ask, but I shan't

For Parkinson's took my last chance.

There was a young lady from Norwich

Who trembled when eating her porridge

She cried "What a mess I am in

With breakfast dripping from my chin

So I'm off to the woods, and for berries I'll forage"

As I sing with my Parkinson’s Choir

I truly could not get much higher

‘tis so uplifting ~ I feel I can fly

As my heart and my soul watch the Moon go by

a sprinkling of moon dust ~ I'm free ~ I can fly

I am like a pumpkin with no seed

I am like an apple with no core

I am like an orange with no peel

I am like a nut with no shell

Parkinsons too them , but I am still me.

A Mum so wonderful and wise

A dreadful disease she could not disguise

A Parky sufferer for many years

A cure would have been music to our ears

Ironically on World Parkinson's Day Mum closed her eyes

I often yearn for just one day that I can dance and sing and play

As now the dreaded Parkinson's has taken that away

To dance like no one's watching is what I yearn to do

but my dancing legs no longer can

Foxtrot ~ Tango or even Can Can

You stare at me because my hand shakes

What do you know of me or mine and the heartbreak

Now I cannot hold the knife or fork to eat

I struggle with buttons and my handwriting is less than neat

I am not what I once was I have suffered defeat

Parkinson's...What can I say?

It turns up uninvited...and it does stay.

No-one has it...the same as another.

I don't have it...but it affected my mother.

So I volunteer...to make a difference and help researchers send it away!

I can't hurry up any more

It takes ages to answer the door

If I try to run

It's not much fun

I end up flat on the floor!

They telI me I have Parkinson’s

though my symptoms don’t always show

One symptom’s constipation

Sorry I can’t tell you more

I really have to go!!

My case is a race to stay in this difficult place,

understanding is a mission impossible

maybe to late for my tailgate,

so ill blow some smoke and go for broke,

unless theres hope!

Eating's a bit of a bore

when half ends up on the floor

Keep those peas on your spoon

or I'll start to swoon

I'll have to sweep up that's for sure.

There's a storm on the horizon.

I see it approaching fast.

It's a deadly and fatal storm.

I've managed to out run until now

But I fear it's catching me up alas.

Half my day in heaven

the other half in hell

half the day I love living

the other half

I pray for Death toll his bell

You may not be able to go on adventures

But that won't stop Pop, no

You carry on the fun at Parkinson's dance

And visit the friends you've made

And I will carry on the adventures for you

Time really matters because it's critical

Especially in case of parkinson's, very crucial

Doctors and nurses Get it on time every time

The Parkinson medications to get your time

Which will make the patient to feel safe and special.

I once had a Grandad who would nod,

Eventually so did his whole bod,

As a child I asked him why,

But he told me a lie,

And said he got shot in the war.

So,you think you’re too slow for a dancer

But with Parkinson’s mates you’re a prancer

Every week you meet up

And with friends share a cup

After dancing with the ENB

I have Parkinson’s what a kerffufle

All I want to do is eat my waffle

It gives me trouble

And stiffness on my back

I’m the new face of Shake and Vac

Shakin stevens

Shakespeare

Shake it up baby

Shake and vac

I can do all those dance moves

I have tremors

its intensifying

And I loose control.

Yes I have parkinsons.

but it makes me who I am.

I've developed a bit of a shake

My tablets a rattle do make

But life's on a roll

Live to the full is my goal

Shake ,rattle and roll is my take.

Fumbling and mumbling

It's pretty humbling

But I ain't grumbling

Just want to stop this d**n shaking

And trembling

Folk may look askance

At Parkinson's people who dance

But exercise is great

'Specially with a mate

So come on. let's prance!

You may be young, you may be old,

You could be rich, you could be poor,

But that 'Old Parky'

is so bold

He could be knocking at your door!

Parkinson’s people can be superstars,

Some have amazing poetical powers,

Whilst reading their verse,

I sometimes uttered a curse,

‘Cos I’m laughing and crying for hours!

A tale of a lass from Barnsley

She’d wake up in the night with a fright

Her dreams were so vivid

It made her quite livid

The dilemna does she flee or fight

Diagnosis of parkinson's is not a death sentence

But you should accept and take it as a positive sentence

Then it will take you to a world of inspiring and positive thinking

Which can lead to optimism and creative thinking

Eventually you can fill many with inspirative sentences

"me? ME? Oh yes I'm fine!"

Masked yet exposed to eyes divine

I share my life with a parasitic cell

Creeping and devouring...my new life in...

"ME? me? Oh no I'm fine...but I'm not..."

My writing starts tidy and tall

And then gets progressively small

My brain won't deliver

My pen's in a quiver

So I can't read my poem at all

My father was incredibly bright,

When diagnosed he took on the fight,

With Parkinson’s UK by our side,

We managed to hold back the tide,

His braveness remains my guiding light.

There once was a woman who shook

So her doctor said "Let's take a look"

She walked up and down, then she stood

Tapped fingers as fast as she could

"Yes it's Parkinson's making you feel crook"

Their was a young women from Ossett

Who staggered about in her office

Most thought she was drunk

and a miserable chump

But Parkinsons D wouldn't stop it.

Roses are red, violets are blue

I have Parkinsons how about you?

My walking's not pretty, my leg shakes alot

but I am still thankful for what I've still got!

I can't beat this illness, although I will try and find new ways of learning until I die!

My Parkinson’s group members are unique,

But they all believe in the words that I speak.

That exercise is good

And they know that they should

Do 30 minutes each day of the week

My exercise group members are great

They’re usually on time, rarely late

Some shake, some are slow

But all raring to go

To work on their strength and their gait

Mum, you are our hero,

A Parkinsons warrior through and through

Determined and strong willed, we've learned a lot from you.

We only hope that we can be half the woman you are

And we hope that one day science will help win the Parkinsons war 💙💙

There was an old codger called Stephen

His moods and his moves were uneven

He got overwrought

But found good support

In a Parkinson’s group he believed in.

A Parkinson’s chap called Nick

Who’s meds just didn’t do the trick,

said the symptoms are worse,

and they just make me curse,

And often they make me quite sick.

When you live with a chronic condition,

And for normal existence you’re wishin’,

Remember you find

It's a positive mind

That delivers a strong disposition.

There's a terrible disease called PD

That wanted to take over me

No way was my shout

And kicked it right out

And now in control is just me

I’d like to say it’s nice to meet you

I always try to be polite Mr P I do

But rather than open the door wide

I’ll say for now please be kind

and wait outside

My Physio tells me to exercise

To do stretches and strengthen my core,

So I go for a swim

Then head to the gym

And hope I don't freeze at the door!

Don't think that I'm not happy to see you

I know it's been a long while

But I must be quite frank,

For my face is a blank

A mask is hiding my smile.

Lack of dopamine in my brain

Could send my lifestyle down the drain

I try to act right

But it’s always a fight

That I battle again and again

When Mr Parky comes to stay

I know I’ll have an awful day

I can’t sleep at night

But continue to fight

And wish that he’d just go away

Let’s Light up blue for Parkinson’s day

A community ‘United’ - shout out by K

Helping raise awareness is the ultimate aim

Keeping faith with Prayers for a cure

Soon ‘one day’ that day will come

Balance

I started tilting forward, then sideways.

I grew lightheaded like a pale green balloon.

Parkinson’s, a doctor said.

My hands don’t tremble—

I walk a curly tightrope.

Just one more step, that's all it takes, easy to say but hard to make

Stumbling around and trying not to fall

Feeling embarrassed as I again stop and stall

At last my feet begin to move but only on the spot

But now I know it is just a matter of time before I can shoot off

The driver of the car coming towards me slows down

He keeps waving me across the road and starts to frown