Privacy Notice

About this Privacy Notice

This privacy notice relates to collecting, recording and storing information described in this privacy notice for publication on the Ethnic Minority Research Inclusion (EMRI) project website. This project is sponsored by the CRN Yorkshire and Humber until March 2023.

In this privacy notice, ‘we’ or ‘us’ means the CRN Yorkshire and Humber EMRI project group; ‘you’ or ‘your’ means you as a user of the website. 

This privacy notice tells you what information we collect and how it is used to support the delivery of the project, including your rights and how to contact us.

What is the Ethnic Minority Research Inclusion Project?

We are a Network of research staff and members of the public from across the Yorkshire and Humber region, working alongside the Clinical Research Network Yorkshire and Humber, with a shared interest in increasing levels of participation in health research within Ethnic Minority communities throughout Yorkshire and Humber.

General Data Protection Regulation Legal Basis

The CRN Yorkshire and Humber EMRI Project Coordination Team is the Data Controller for the personal information collected and processed about you in accordance with data protection legislation.

Our legal basis for collecting personal information through the website under GDPR is:

GDPR Article 6 (1) (a): the data subject has given consent to the processing of his or her personal data for one or more specific purposes

Withdrawing your consent to hold your information

If you change your mind and would like to withdraw your permission for your information to be held by the EMRI project, you can do so by contacting us at emri.crnyorkshumber@nihr.ac.uk. 

Where you withdraw your permission, your information will be permanently deleted from our system and removed from the website.

Updating your details

If you need to update any of the information you have provided, you will need to email emri.crnyorkshumber@nihr.ac.uk and we will update our information accordingly.

Information we collect

In operating our website we may collect and process the following data about you:

• Details of your visits to our website and the pages/resources you access

• Information you provide such as details submitted via questionnaires

• Information provided to us when you communicate with us for any reason

Where we store your personal information

The EMRI project coordination team processes your personal information for the EMRI project in the United Kingdom. Your information will be stored securely on the NIHR hub which complies with ISO 27001 and access will be restricted to those members of the EMRI project team for the purposes for which it is intended.

The website uses Google Analytics, a web analytics service provided by Google to analyse how users interact with the website. You may decline the use of cookies, which collects usage data  for analysis,  by selecting the appropriate settings on your browser. We use records of the pages users have visited to analyse trends so we can improve the website. These records do not contain any personal information about website users.

Your rights over your personal information

You have the following rights in relation to to your personal information obtained by the EMRI Project:

• the right to be informed about how your personal information is being used (be informed)

• the right to access the personal information (get access)

• the right to have inaccurate personal data rectified, or completed if it is incomplete (rectify or change)

• the right to erasure of your personal information in certain limited circumstances (erase or remove)

• the right to restrict processing in certain circumstances (restrict or stop processing)

• the right to object to the processing of your personal information in certain circumstances (object ot processing or use)

• the right to request that elements of your data are transferred either to you or another service provider in certain circumstances (move, copy or transfer)

• the right to object to certain automated decision making processes using your personal information (know if a decision was made by a computer rather than a person)

• the right to complain to the Information Commissioner (raise a concern)

More information about your legal rights can be found on the Information Commissioner’s website.

Please note that some of these rights do not apply in relation to the processing of your personal information by us due to the specific requirements and exemptions which apply to them. The rights which do apply in relation to the personal information we process are set out below.

Summary of your rights

Summary of your rights over your personal information

Rights

Does this right apply to the personal information I share with the EMRI Project?

1. Be informed: Yes

2. Get access: Yes

3. Rectify or change: Yes

4. Erase or remove: Yes

5. Restrict or stop processing: Yes

6. Move, copy or transfer: Yes

7. Object to processing or use: Yes

8. Know if a decision was made by a computer rather than a person: No - automated decision making will not take place using your data

9. Raise a concern: Yes

Contact us

If you have any queries in relation to the use of your personal information in connection with the EMRI Project or if you wish to exercise any of your rights above, please contact emri.crnyorkshumber@nihr.ac.uk. 

Contact the Information Commissioner

If we are unable to resolve any queries or concerns in relation to the use of your personal information in connection with the EMRI Project, you can raise your concern with the Information Commissioner. You can contact the Information Commissioner’s Office in the following ways:

• use the online Contact Us service

• call 0303 123 1113

• write to the Information Commissioner’s Office, Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF