A number of factors can cause barriers to maintaining long-term relationships with communities. Being aware of what these might be in advance can help plan for and mitigate these.
The budgets we have available to resource long-term engagement work can be short-term in nature. For example, we may want to invest in our engagement work over a period of years but have to rely on an annual budget cycle. Organisational shifts in budget priorities can put resourcing at risk in these instances, and can also cause anxiety and lack of trust for community partners if potential resourcing and funding of their work is at risk.
Community engagement in research can often be under-resourced both in terms of funding and staff time dedicated to this work. Community engagement can be time and resource intensive and this needs to be reflected in organisational and project resource allocation. When it is not, engagement can become unsustainable.
Community engagement is a relationship-led endeavour. It depends on individuals building rapport and trust with one another. Community engagement processes are often led by one person in a research organisation. If this person leaves, they can take the relationships they have built with them. The same can happen when staff or volunteers you have been working within the community move on and one of your key relationships in the community is lost.
In some cases, you may find you have a lack of research opportunities or activities to ‘offer’ to communities. For example, perhaps there are no relevant research studies on your portfolio that people would be eligible to take part in. This can make it difficult to know how to proceed with your engagement, and if the community isn’t forthcoming with ideas of what they would like, this can lead to a lack of continued engagement.
The above circumstances can lead to loss of trust and damage to the relationships you have built within the community. As a result, there may be less engagement with research within the community. This leads to the community continuing to be under-served by health and social care research.
You are more likely to build sustained relationships and engagement by building on what already exists within the community. Take an asset-based approach, where you look at the existing resources, systems and strengths within the community and understand how your organisation can add to and support these with research-related activities.
This allows the opportunity for research to embed within wider systems and become self-sustaining. For example, if the Local Authority is already working in partnership with community groups on a health and wellbeing initiative, how can research engagement and participation play a part?
Understanding what people would like to see happen in their community can help you to crowdsource ideas that could bring meaningful change for people that live there. Community partners and individuals may have ideas that you had not even thought of as a possibility, and have connections to local opportunities and resources.
If people are interested in activities that are not directly related to research, see what you can do to facilitate this. For example, people may be interested in getting information about a specific health topic.
For example, in 2021-22, the South London Clinical Research Network (CRN) worked with a local migrant women’s centre, the Baytree Centre, who advised them that people were interested in learning about diabetes. South London CRN arranged for a diabetes specialist to provide an information session about diabetes at a regular women’s health and wellbeing group held at the centre. Research only made up a small part of the session, but it meant that research as a topic was introduced in the wider context of a common interest.
Showing up for our communities and their interests beyond our own immediate agendas and deliverables also helps to build trust, as it shows that we care about their priorities, and in providing them with things that benefit them. This may mean that they are more willing to engage with us and with research when opportunities arise.
It is much better to manage expectations from the beginning about what is possible through your relationship with communities than to over-promise or be overly vague about what you hope to achieve. By being transparent about what is possible, and what you can and cannot do as a partner with communities, means they can make an informed choice about working with you and don’t risk feeling disappointed and disengaging with you.
Once you have decided you want to do community engagement, make sure you have a plan for resourcing this engagement. You will need to plan for resourcing in the short term, i.e. the early stages of your engagement. If you are hoping to build long-term relationships and you know that your funding processes involve fixed-term budgets, you will need to create a ‘future-proofing’ plan to make sure you have enough resources to continue your engagement over more than one of your fixed-term budget periods. It can be tricky to do this, but even having an estimated amount of resources set aside provisionally for future budgets can help to ensure you can continue your engagement.
Your partner organisations need to be resourced for their time. Providing them with grants that they can take ownership of can help boost local engagement activities with research. Consider how you can either provide grants directly or support your partners to find and apply for funding that would enable them to continue engaging with health and social care research. There are various funding opportunities that enable communities to engage with health and social care research (see further resources for more information). Could you share these with your partners and support them with filling in an application or applying together as co-applicants?
Your engagement with your community may not look the same all the time. For example, in some time periods, you may be informing (such as sharing information about studies or areas of health research), whilst in others there may be opportunities for more in-depth engagement (such as collaborating on research priorities to inform your organisation’s research strategy).
This is natural and okay, provided it is agreed in partnership with the community, and continues to provide mutually beneficial results (i.e. it does not become extractive or tokenistic). Provide feedback and updates on an ongoing basis to your community partners, regardless of whether you feel like there is a lot to update people on. If people have given their time and contributions to your project, they should know what you have done as a result of that contribution, even where you haven't done as much as you had hoped, or if there are delays for any reason.
If there is a lull in activity or there is less activity to provide feedback or share information on with partner organisations, can you offer to meet for a coffee anyway?
Programme Development Grants - Developing Innovative, Inclusive and Diverse Public Partnerships. Annual funding opportunity giving research teams, community and charity organisations and groups the opportunity to explore and develop partnerships together. giving research teams, community and charity organisations and groups the opportunity to explore and develop partnerships together. Partnerships can secure up to £150k for between 6 and 18 months to develop relationships and try out new ways of working together and with communities on health and care problems, or to develop new ways of working between researchers and communities that could be adopted by others. Partnerships must include a host organisation who submits the jointly developed application for funding, and takes responsibility for it on behalf of the partners; that organisation must be an NHS trust, NHS Body or another provider of NHS services in England. Up to £150,000.
Research for Patient Benefit programme. Funds health, public health and social care research covering a wide range of health service challenges. Applications are encouraged that have a strong element of interaction with patients and the public and that have been conceived in association with a relevant group of service users.
Inspire Fund - Public Engagement Grant. Provides funding for projects that engage the public with the topic of dementia and the life-changing research going on into the condition. Through the scheme, Alzheimer's Research UK wants to build relationships between communities and researchers and is especially interested in proposals led by community groups or organisations. Up to £25,000.
Diversity in Science Grants. Provides grants of up to £500 to individuals, groups, charities or not-for-profit organisations. These grants are available to any individual or group with a project that will support and address issues relating to inclusion and diversity in science. Up to £500.
The Ideas Fund. A grants programme run by the British Science Association and funded by Wellcome, which enables the UK public to develop and try out ideas that address problems related to mental wellbeing by working with researchers.
A webpage providing a list of funding sources for public engagement, organised by discipline.
Outreach Grant 2023. Provides funding to support outreach and public engagement events and activities that will reach a variety of public audiences.
National funding body with a range of funding areas and calls, some of which may be relevant to community-engaged health and social care research. Public engagement is one of the UKRI's funding focus areas.