An app for caregivers of pediatric patients with complex needs to track health records. We aim to improve care integration, reduce caregiver burden through a gamified affirmation meditation integrated into a care calendar, and enhance communication between families and healthcare providers.
Principal Investigator: Cheri Salazar, DNP, CPNP-PC/AC, CHPPN
Academic Position/Title: Assistant Professor, Michigan State University College of Nursing, Pediatric Nurse Practitioner, Michigan State Pediatrics
Co-Pis Faculty: Susan Bonner, Celeste Campos-Castillo
Project Site(s): Michigan State University Pediatrics, University of Michigan Pediatrics
MSU Students:
Student PIs: Yevgenia Minchuk, Daniel Galisteo, Avery McLean
Creation of a Care Coordination Tool to Streamline Care for Children with Complex Medical Care Needs Poster by Cheri Salazar
A user-friendly, accessible care coordination tool tailored for families of children with CMC (complex medical care) in underserved areas will improve care integration, reduce caregiver burden, and enhance communication between families and healthcare providers.
1. Develop a prototype for a care coordination mobile application based on caregiver and provider input that is accessible, user-friendly, and adaptable to various healthcare settings.
2. Refine the tool based on feedback from caregivers, PCPs, and nurse coordinators to ensure it meets the needs of all stakeholders.
3. Assess the impact of the tool on caregiver burden and provider workload and child outcomes as defined here:
Health and Clinical Outcomes
Reduction in hospitalizations and emergency department visits
Improved management of chronic conditions (e.g., asthma control, seizure frequency)
Medication adherence and accuracy
Timeliness of care (e.g., fewer delays in referrals or treatments)
Quality of Life and Functioning
Child’s physical and emotional well-being
Developmental progress
School attendance and participation
Family and Caregiver Outcomes
Caregiver burden and stress levels
Caregiver satisfaction with care coordination
Perceived support and empowerment
Time spent navigating care systems.
System-Level Outcomes
Care plan completeness and usage (e.g., shared plans of care)
Care team communication and collaboration.
Equity in service delivery
4. Evaluate the tool’s usability, content, and feasibility for integration with electronic medical records (EMRs).
