How can we help stop the spread

The best way to stop and inherited gene from spreading, is to stop passing it on. If your parent has the gene, or your family has a history of it and your parent hasn't been tested themselves, than please get tested! You can get tested by the age of 18 and if you find out you have the gene, please do not take the risk and have children. If you would like to have kids take the option of adoption, but make sure they have a stable mom/dad to fall back on once symptoms show and become pretty bad. The disease will never go away, but if we get more people tested and have them not pass it on, the numbers will definitely decrease.

Here's people talking on their experience of being tested