PROGRAM
(Preliminary)
Embedded Files
Day 1
NOVEMBER 14, 2026
NOVEMBER 14, 2026
SATURDAY
9:30 - 10:00
OPENING SESSION
Authorities to be confirmed
Susana Noval Iruretagoyena, Director of the Foundation
10:00 - 10:45
STRENGTH LIES IN THE JOURNEY
Opening Lecture:
“Looking to the Future with Hope”
10:50 - 11:35
BEYOND THE DIAGNOSIS
Karen Heath Geneticist
Isidoro Narbona Gynecologist
Susana Noval Presentation of the study “First News”
Moderator: Alejandra Sánchez
SPORTS ACTIVITIES from 10 Years of Age: “We Keep Moving”
Ernesto Ruíz Polo.
COFFEE BREAK 11:35 - 11:55
12:00 - 13:00
PRESENT AND FUTURE OF TREATMENTS IN SKELETAL DYSPLASIAS
ASCENDIS
BioMarín
BridgeBio
Tyra
Moderator: Guillermo de la Cueva
AQUATIC THERAPY for Ages 8–16
Carmen Barreal
13:05 - 14:00
CURRENT APPROACHES IN PEDIATRIC ENDOCRINOLOGY
Follow-up of Children With and Without Treatment
Isabel Leiva Málaga
Ana Coral Barreral Madrid
Purificación Marín Reina Valencia
Ana Prado. Galicia
Moderator: Karen Heath
SELF-CARE IN ADULTHOOD
Rosana García, Psychologist
Antonio Leiva, Orthopedic Surgeon
LUNCH 14:00 - 16:00
16:00 - 16:45
PULMONOLOGIST AND NEUROSURGERY: Assessment and Follow-up
Sara Iglesias Neurosurgeon
Pulmonologist to be confirmed
Moderator: Belén Pimentel
16:50 - 17:20
SCHOOL: Challenges and Opportunities
Carmen Alonso
Marián Losada
Aitor López
Izan, Alba Vizcaíno, Tiago, Claudia Horcajada, Javier Rodrigo
Moderator: Susana Noval
FOOT CARE AND FOOTWEAR FOR INFANTS AGED 0–3 YEARS
Alicia Fernández Mengibar. podóloga
17:25 - 18:15
OUR PERSPECTIVE: “What We Want to Share”
-Children share their experiences.
-Children share their experiences.
-Presentation of the project:
“Weekend Programme for Adolescents”
Moderator: Cristina González Villar
18:15 - 19:15
WORKSHOPS
Listening Workshop for parents of children aged 0–12 years
Listening Workshop for parents of adolescents aged 12–18 years
Listening Workshop for adults only
Legal Consultation Workshop, Felipe Orviz
Mindfulness Workshop, Fidel del Páramo
DINNER – DANCE
21:00
Day 2
NOVEMBER 15, 2026
NOVEMBER 15, 2026
SUNDAY
10:00 - 11:00
LIMB LENGTHENING AND COMMON SURGICAL PROCEDURES
When, How and Why?
Moderator: Felipe Luna
AQUATIC THERAPY for Ages 0–7
Carmen Barreal
11:05 - 11:40
RESEARCH IN SPAIN: Current Overview and New Horizons
Moderator: Antonio Leiva
PHYSIOTHERAPY IN LIMB LENGTHENING
Ma.José Sosa
11:45 - 12:15
SPINE AND QUALITY OF LIFE IN SKELETAL DYSPLASIAS
Pedro Domenech
Carmen Barreal
Presentation of the study:
“Natural History of the Spine in Achondroplasia”
Jorge Mariscal
Moderator: Juan Miguel Gómez Palomo
TIPS FOR ACTIVITIES OF DAILY LIVING
12:20 -12:40
PHYSIOTHERAPY FROM SCHOOL AGE TO ADULTHOOD
Carmen Barreal
Cristina Caño
Moderator: Ma. José Sosa
INFANT MASSAGE for Ages 0–3
Belén Ojeda Ruisánchez
12:40 -13:00
NUTRITION THROUGHOUT LIFE
Laura Garde
Moderator: Isabel Leiva
13:05 - 14:00
THE VOICE OF A NEW GENERATION
Adulthood in First Person: “The Future Starts Now”
-Open discussion session: our young adults share their experiences
-Presentation of the student exchange programme within the EU/Europe and the USA
CLOSING CEREMONY
14:00
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