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Hosted by the National Fabry Disease Foundation
Thank you for your interest in the 2026 Fabry Family Camp and Conference!
Thank you for your interest in the 2026 Fabry Family Camp and Conference!
Conference Overview
Conference Overview
Who: Any individual in the U.S. with Fabry disease and their family members.
What: Two days of education, exhibits, and planned activities, including daytime childcare.
When: Thursday 9/17- Friday 9/18 (travel on Wednesday 9/16 for many attendees)
Where: Embassy Suites by Hilton Greensboro - 204 Centreport Dr, Greensboro, NC 27409
How: Complete the registration survey here: https://www.surveymonkey.com/r/6F9K7FW
^The above registration form is required for everyone attending, volunteering, or exhibiting at the conference or camp in North Carolina.
Those unable to attend in person are invited to participate virtually via Zoom on Friday. Zoom registration is not yet available.
Camp Overview
Camp Overview
Who: Any family with a child with Fabry disease between the ages of 6 and 16 may apply.
What: Two days of family fun, camp cheers, outdoor and indoor activities.
When: Afternoon of Friday 9/18 - Late morning of Sunday 9/20
Where: Victory Junction Camp - 4500 Adam’s Way Randleman, NC 27317
How: Whether you wish to attend (or volunteer at) the conference, camp, or both, the first step is to complete a registration survey with the NFDF here: https://www.surveymonkey.com/r/6F9K7FW
For those who wish to attend or volunteer at camp, a second step is required. Victory Junction requires a separate application through their online portal along with several associated forms. After you submit this registration survey, we will review your responses and email those applying to camp with step-by-step application instructions specific to Fabry Family Camp in 2026 (please allow up to two business days).
You can learn more about Family Weekend Camps at Victory Junction below:
Watch the video below to hear what past participants of the NFDF's annual conference and camp have to say about their experiences!
Watch the video below to hear what past participants of the NFDF's annual conference and camp have to say about their experiences!
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