Who: Any individual in the U.S. with Fabry disease and their family members.
What: Two days of education, exhibits, and planned activities, including daytime childcare.
When: Thursday 9/17- Friday 9/18 (travel on Wednesday 9/16 for many attendees)
Where: Embassy Suites by Hilton Greensboro - 204 Centreport Dr, Greensboro, NC 27409
How: Registration is for the 2026 conference is now closed.
Those unable to attend in person are invited to participate virtually via Zoom on Friday. Zoom registration is not yet available.
Who: Any family with a child with Fabry disease between the ages of 6 and 16 may apply.
What: Two days of family fun, camp cheers, outdoor and indoor activities.
When: Afternoon of Friday 9/18 - Late morning of Sunday 9/20
Where: Victory Junction Camp - 4500 Adam’s Way Randleman, NC 27317
How: Applications for the 2026 conference are now closed.
You can learn more about Family Weekend Camps at Victory Junction below: