Who: Any individual in the U.S. with Fabry disease and their family members.
What: Two days of education, exhibits, and planned activities, including daytime childcare.
When: Thursday 9/17- Friday 9/18 (travel on Wednesday 9/16 for many attendees)
Where: Embassy Suites by Hilton Greensboro - 204 Centreport Dr, Greensboro, NC 27409
How: Registration for the 2026 conference is now closed.
Who: Any family with a child with Fabry disease between the ages of 6 and 16 may apply.
What: Two days of family fun, camp cheers, outdoor and indoor activities.
When: Afternoon of Friday 9/18 - Late morning of Sunday 9/20
Where: Victory Junction Camp - 5467 Fred Lineberry Road (Gate 1), Randleman, NC 27317
How: Applications for the 2026 conference are now closed.
You can learn more about Family Weekend Camps at Victory Junction below: