For this year’s events, COVID-19 vaccinations are encouraged but NOT required. However, antigen tests are required for all participants upon arrival (provided by the NFDF) to protect the safety of all attendees.
Those who test positive for COVID will not be able to attend group activities. To avoid disappointment, please consider taking a COVID antigen test before leaving home.
There is no cost to attend for individuals with Fabry disease and their family members.
The NFDF is very thankful to its volunteers who help the conference and camp run smoothly; we couldn't do it without you!
We can accept a total of 50 volunteers in 2026, including NFDF staff and board/committee members, healthcare providers, students, Fabry community members, and our industry supporters.
The most important thing you can do to be approved as a volunteer is to complete the NFDF registration and the VJ volunteer application (including all forms). Applications less than 100% complete will not be considered.
2026 NFDF Volunteer Registration will be available the week of June 15th!
2026 Victory Junction Camp Volunteer Application will be available in July, specific date TBD.
The National Fabry Disease Foundation (NFDF) is an IRS 501(c)(3) nonprofit charitable organization dedicated to supporting the Fabry disease community. Our five primary functions are assisting with Fabry disease education, facilitating Fabry disease identification to improve Fabry disease recognition and diagnosis, providing various forms of assistance to individuals with Fabry disease, supporting Fabry disease research, and promoting advocacy for Fabry disease issues.
Please sign up for our email newsletter to stay in touch! https://tinyurl.com/NFDF-news
Website: www.fabrydisease.org
Email: info@fabrydisease.org
Phone: 1-800-651-9131
LinkTree: https://linktr.ee/thenfdf
Facebook: www.facebook.com/FabryDisease
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YouTube: www.youtube.com/user/TheNFDF
LinkedIn: https://www.linkedin.com/company/the-national-fabry-disease-foundation
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