Program
21th November 2014, Friday
13:30 Registration is opening
14:00-17:00 Satellite meeting only for FEWS representatives (room Andrássy)
18:00-19:00 Welcome Reception (room Budapest)
- Opening concert of artists of the Hungarian State Opera
- Opening of a Photo Exhibition and the Poster Session
22th November 2014, Saturday
09:00 Opening Speeches. Confirmed speakers: Attila Beneda (Deputy Secretary of State, Ministry of Human Resources, Hungary), Paul Pyck (Secretary of FEWS), Zsuzsanna Bojtor Pogányné (President of HWSA),
Marion Coutarel (France) - "Chromosome 7", a story of an actress living with Williams Syndrome
Session one.
Session chair: Dr. Gábor Pogány (Hungary)
10:00 An overview of the genetic aspects of Williams syndrome and research approaches. Confirmed speaker: Dr. Kay Metcalfe (UK)
10:35 Williams-Beuren Syndrome - A multisystem disorder. Confirmed speaker: Prof. Dr. Rainer Pankau (Germany)
11:10 Coffee break
11:40 Cardiovascular anomalies in patients with Williams syndrome. Confirmed speaker: Prof. Dr.Damien Bonnet (France)
12:15 Oral health (care) and Williams-Beuren syndrome: challenges and opportunities. Confirmed speaker: Prof. Dr. Dominique Declerck (Belgium)
12:50 Lunch
Session two.
Session chair: Prof. Dr. Rainer Pankau (Germany)
13:50 The need for European-wide network for evaluating medicines for WBS, Example of minoxidil a randomized controlled trial for children with WBS in France. Confirmed speaker: Pro. Dr. Behrouz Kassai (France)
14:25 Cross border health care information. Confirmed speaker: Dr. Gábor Pogány (Hungary)
15:00 Coffee break
15:30 The Williams syndrome cognitive profile: Implications for education. Confirmed Speaker: Hannah Broadbent, Dr. Emily Farran (UK)
16:05 Music Therapy. Confirmed Speaker: Anita Toth-Bakos (Slovakia)
16:40 Closing the day
18:00 Optional dinner and sightseeing Tour on the Danube (in case of enough applicants)
23rd November 2014, Sunday
Session three.
Session chair: Prof. Dr. Csaba Pléh (Hungary)
10:00 Neurocognitive studies of infants and toddlers with Williams syndrome. Confirmed speaker: Dr. Dean D'Souza, Prof. Dr. Annette Karmiloff-Smith (UK)
10:35 Cognitive and Behavioural phenotype. Confirmed speaker: Prof. Dr. Stefano Vicari (Italy)
11:10 Coffee break
11:40 Sleep in Williams syndrome: Insights from EEG studies. Confirmed speaker: Prof. Dr. Ilona Kovács, Dr. Robert Bódizs (Hungary)
12:15 Syndrome-specific linguistic markers of Williams syndrome - experimental and intervention data. Confirmed speaker: Prof. Dr. Julia Siegmüller (Germany)
12:50 Support of Social Participation of People with Disabilities. Confirmed speaker: Dr. Lucie Procházková, Lenka Kratochvilova (Czech Republic)
13:25 Closing the conference and lunch