Embedded Files
Resources are made available here to assist staff, researchers and students, both internal and external, in all procedures associated with the registry. It begins with an overview of how to recruit patients into the registry, classify them into cohorts, collect the relevant data and then use the data for research.
Below you will find first two diagrams outlining the tasks and checks required for each research relevant patient coming through the clinic at QEII. These differ slightly for new or existing patients. New being a patient that is coming for a new treatment, they may have been treated previously at the hospital, but if they are being seen for the first time for this particular condition they are considered New. Section 3.1.2 will help identify when a patient will be considered New.
Figure 3.1.3 below outlines the general flow of information through the life cycle of a patient's treatment and follow-up period. While Figures 3.1.1, 3.1.2 give guidance of in clinic procedures.
3.1.1 Participant inclusion and protocol selection
3.1.1 Participant inclusion and protocol selection
Figure 3.1.1a: Patient registry inclusion
Figure 3.1.1b: Patient cohort selection
3.1.2 Daily/weekly activities
3.1.2 Daily/weekly activities
Consult Lists - consult days
Consult Lists - consult days
Cheatsheets
Cheatsheets
Procedures and Diagnoses
Procedures and Diagnoses
Patient follow-up - fortnightly
Patient follow-up - fortnightly
Discrepancies checks (including imaging) - fortnightly
Discrepancies checks (including imaging) - fortnightly
PROMS, consent and surgical data collection
PROMS, consent and surgical data collection
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