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June 2024 Updates
June 2024 Updates
I am now six months on from my last active treatment. My hair is growing back and is insanely curly. It doesn't want to do anything but grow upwards. I'm just grateful that it has grown back. I've included some photos to show how it has grown. I've also had it cut three times since January in the hope that it'll be tamed...no such luck!
I've had a couple of issues checked. Since finishing treatment, I have ached...everywhere. When I had my first check up with Mr C, I mentioned this. He felt that I shouldn't be aching and so ordered a CT scan. I was very happy with this as I hadn't had one at all. Thankfully, that came back clear.
I've also had my scars checked as I've felt lumps. This has turned out to be scar tissue. What I'm realising is that the neuropathy I have in my fingers and feet is improving and so things are beginning to feel very different. I've had neuropathy since September so 9 months. It's very odd being able to feel things normally. I will hasten to add that this isn't all the time - for the most part, they are still fizzy.
Most importantly (for me, anyway) I've had my first tattoo. I love it and was something I've wanted since midway through chemo! It represents the triple negative aspect of the cancer through three minus signs. They are on my middle finger...I'll let you work out the rest!
I'm also volunteering to do a number of things. Activities have included writing cards to thank people for raising money for Macmillan, taking part in focus groups around cancer, writing blog posts about my story, testing questionnaires through a 'thinking aloud interview', and trialling an exercise app for people with long-term health conditions. It's extremely interesting.
Most recently, I have been contacted by someone at the Kent and Medway Cancer Alliance...I am waiting on more information.
The Pure Ex focus group was interesting. This will eventually lead to a community-based exercise programme that professionals can refer women to after they have finished their breast cancer treatment.
The 'We Are Undefeatable' app is great. Lots of good exercises to try. I was also part of a focus group giving feedback.
I took part in a thinking-aloud interview using questions and then deciding which treatment burden definition they best matched to. I found this fascinating.
Each month, I am adding a post to Instagram giving people a friendly reminder to check their chests.
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