On Thursday 20 June, Tesha and her team visited Brick Lane, London for the private view of By All Means, a creative art show featuring works from Falmouth University Photography Students (it's open at Free Range until June 23rd, 6pm!).
Featured among the photographers was Azeem Sher who lives with Chronic Migraine and depicts these experiences through his work. Tesha came to support Sher at the launch, assisting in the advocacy of migraine disease, and handing out Shades for Migraine's purple glasses!
It was a pleasure for Tesha to attend and experience the show; and speak with guests, relating her advocacy to Sher's work.
Thank you Azeem for the great conversation! All the best with your art and advocacy.
In a conversation with Carenity, Tesha opens up about her life before and after migraine became a central part of her narrative.
Tesha's multifaceted approach to self-care, incorporating meditation, plant medicine, and African spirituality, offers a unique perspective on living with migraine:
'Make time and space to sit with how you feel about your diagnosis, I underestimated how long I would need to grieve my able-bodied life and be kind to yourself.'
'Again, this is something I failed to do, and I went through a period of self-loathing as a result.'
Book Review podcast Inside the Alcove moves offline for their first event, sharing the joys of art, literature, and community.
'We're excited to create a space where people can come together, celebrate the power of stories, and cultivate community connection. It's more than an event; it's a testament to the transformative power of literature and the community we can create through shared experiences.' – Inside the Alcove founders Abi and Mim.
Alongside a live podcast from Inside the Alcove, the event also had workshops, performances, an art-making station from The Mamahood Space, a book-share Library, and catering from Ire's Kitchen.
Tesha was invited to promote Shades for Migraine Day, raise awareness for migraine disease, and hand out the special purple Shades for Migraine shades.
Thanks to Inside the Alcove for your support!
For Migraine and Headache Awareness Month, CreakyJoints speaks to Tesha and other community members about how living with migraine can impact their lives.
The prompt was: 'How has living with migraine changed your daily routine?'
Tesha replies:
'Living with migraine is bittersweet; I have certified in holistic modalities that I may have never sought out had it not been for me needing a more expansive toolkit. I've learned to slow down, listen to my body, and prioritize the things that bring me joy.'
'On the other hand, I have given up a career I love; I'm financially dependent on the government and depend heavily on my mom to meet my care needs. My mental health is often fragile and I live with uncertainty; I never know how long an attack will last or whether my abortive medication will successfully alleviate symptoms. No two migraine attacks are alike.'
Books Aloud is a Birmingham Literacy Trust campaign that celebrates the practice of reading aloud to groups. Regardless of age, it can spark meaningful conversations; encourage a love of reading; access reading and strengthen literacy skills; and build connections among listeners.
This campaign – for library staff, care and health specialists, teachers, refugee officers, community leaders, and bookworms who'd like to volunteer – is a challenge to read aloud to groups of young people and adults at least five times before the end of July 2024.
The Literacy Trust has prepared resources, prizes, and they'll even send you a book of your – or your group's – choice, to read aloud together.
Tesha goes live on Instagram to give some updates on Living with Migraine, as well as some upcoming public engagements, including:
Receiving new medication and current options available (#Atogepant #CGRP #Botox #NerveBlockInjection)
Shades for Migraine 2024: Tesha is the one of the only Black and UK Ambassadors this year – wear a pair (of shades) to show you care!
Partnering with The Literacy Trust to encourage children to express Migraine symptoms to adults.
Supporting The Literacy Trust @ Birmingham Pride
PIP: The UK Government reducing financial support to Disabled People via Personal Independent Payments
My attempts to address the lack of representational images for the Migraine Community.
A special Instagram Live Guided Meditation
The Arkhe is an 'afro-speculative' space to help Black people actualise themselves and build a culture for living in Britain.
It launched at MAIA's Yard in March 2024 with an Art School, a Manifesto Writing Session, a Capoeria Workshop, and an Open Conversation on Reimagining Bystander Awareness.
Tesha was among the artists commissioned to respond to and commemorate the launch of the Arkhe on Saturday 16 March. Her guided meditation and intentions for this new space helped kick off the launch event.
Tesha has successfully earned her Level 3 certificate in 'Understanding the Principle of Dementia Care' via awarding body NCFC Cache (Council for Awards in Care, Health and Education)
In November 2023, I joined 25 other Migraine Patients and 25 MPs in UK Parliament for the Migraine Trust's 'People with Migraine Deserve Better' event. This was a fairly informal event where we could share our experiences of living with Migraine.
The encouragement from Migraine Patients about the work I've been doing, as well as my learned knowledge meant a lot. Their compassion for my symptoms were welcome too. A lovely couple in particular described me as, 'good trouble', and I agree.
Shout out to the only other Black Migraine Patient – Tasha from Pain Warrior Code! I look forward to making mischief and Black Girl Magic with you in 2024!
Due to huge disparities across the NHS Trusts, I found I was actually a little further along in my Migraine journey than most of the patients I spoke to. I encouraged them to:
Do their own research
Exercise their right to complain, and
Seek out second opinions.
So much of my time was spent educating others that someone asked me if I was scheduled as a speaker!
My main take away points were:
There is a postcode lottery as it relates to access of CGRP medications
People are not accessing specialist care early enough
There aren't enough Migraine Specialists
There isn't enough awareness of Migraine management tools outside of medication
There needs to be more awareness of early indicators of Migraine.
The Senior Neurologist suggested that a lot of the work that would encourage better Migraine care and education, cannot be done by the NHS alone. This feels like a heavy weight to place on advocates whilst we navigate the disease. It is not lost on me that most (if not all) charities do not have the cultural competencies to provide support relating to the additional intricacies of racism and erasure.
Shock horror! I would actually like to do some speaking engagements next year. If you are hosting an event, have a podcast, or know of anyone I should connect with, then this is me throwing my hat into the ring.
Next week is #MigraineAwarenessWeek! Join Shades for Migraine & Migraine World Summit Community Leader Tesha Murrain-Hernandez as she talks to the Founder of The Mamahood Space Alisha S about:
The process of receiving a Migraine Diagnosis and accessing Adequate Care
Safe Migraine Treatment during Pregnancy
Navigating 'Mum Guilt'
Attitudes to Migraine in the Workplace
Tuesday 26 September, 12pm. Instagram Live.
24 – 30 September 2023 is Migraine Awareness Week! Tesha and the Migraine Trust will be campaigning for #BetterMigraineCare for the 1 in 7 people living with migraine in the UK.
How to support? Use the hashtags to talk about it on social media, and support Tesha's campaign!
June is National Headache and Migraine Awareness Month in the United States. CHAMP (Coalition for Headache and Migraine Patients) has organised some events and activities for the month, including:
1 June: Migraine at Work
7 June: In Remembrance
17 June: Miles for Migraine
18 June: Headache, Diseases & Men
19 June: Disparities in Headache
21 June: Shades for Migraine
23 June: Migraine during Pregnancy & Lactation
24 June: Cure for Cluster Virtual 5K
29 June: Chronic Migraine Awareness Day
Monday 15 – Sunday 21 May was Mental Health Awareness Week. This year's theme was Anxiety.
On Instagram, Tesha briefly spoke about how ill mental health can occur alongside chronic illnesses, and reminded people of the Shades for Migraine campaign in June.
April was National Volunteer Month in the United States. During the month, Shades for Migraine introduced their Community Leaders, with Tesha Murrain being one of the few from the United Kingdom.
Tesha will be working on the campaign for June 21st.
In March, Tesha Murrain-Hernandez was invited to Eastside Projects to deliver a guided meditation in response to thoughts around self-actualisation within the Black British Diaspora.
This was part of 'Liminal People', which included a showcase of films from artists Amartey Golding, De’Anne Crooks, Larry Achiampong & David Blandy, and Tanazia Gabriel-Fleary.
The films revealed some concerns around the Black British identity, namely refuge from systemic violence; the tangibility of ‘Black Britishness’; a lack of tools to work through trauma; and the other cultural-social implications of a postcolonial aftermath.
'Liminal People' was a precursory event to explore some themes underpinning upcoming exhibition GOD-POCKET (2 June – 15 July 2023).
Sacred Conversations With Our Ancestors spiritual retreat creates a supportive space where the diaspora can come together to deepen their ancestral connection. This year, it will be taking place in Barbados during May.
In January, Ìyá Simone Arthur, Ìyá Ìfé Michelle Mulligan and Tesha Murrain-Hernandez discussed ancestral veneration, as well as the upcoming ancestral experience Sacred Conversations With Our Ancestors.
BRMTWN collaborated with filmmaker Thenjiwe Niki Nkosi on a community Micro Film Festival, showcasing at five venues across Birmingham, and featuring her short film & commentary The Same Track.
This festival was coordinated alongside Nkosi's wider project with Eastside Projects: Equations for a Body at Rest.
Tesha worked on this project as a Creative Access Assistant.
IN LOVING MEMORY OF ERROL is a publication stylised as a funeral pamphlet, to celebrate the lives of those on the 'Ship Called Jesus'.
Contributors came from creatives and community groups already involved in the project, as well as others responding to a call out distributed online.
Tesha worked on the publication through BRMTWN.
BRMTWN collaborated with Word Life Centre's Litty Committee on their community clean-up project, helping them document their work.
Tesha worked on the project as an Artist & Access Consultant.
Mono Log Sessions was a BRMTWN online spoken word platform for poets, spoken word artists, performers & actors.
Tesha worked on the project as a Creative Access Assistant.