Embedded Files
SHAPE+ is working toward a future where chronic pain research reflects the experiences, knowledge, and priorities of 2S/LGBTQIA+ communities.
As the project progresses, we will use this page to share what we learn and the resources created with members of the SHAPE+ community. You can also explore the stories, presentations, and publications that have contributed to the development of the project.
Why this work matters
Why this work matters
Understanding chronic pain in 2S/LGBTQIA+ communities
Understanding chronic pain in 2S/LGBTQIA+ communities
In this article for the Community-Based Research Centre, SHAPE+ Principal Investigator Codie Primeau reflects on his experiences living with chronic pain and how those experiences intersect with queerness.
The article discusses why we need to hear directly from 2S/LGBTQIA+ communities to better understand chronic pain, improve access to affirming care, and develop research that responds to community priorities.
How the project developed
How the project developed
SHAPE+ has grown from earlier work exploring how citizen science could support greater community involvement in chronic pain research. The presentations below document the development of this approach and the ideas and methods that helped inform the current project.
Many of these presentations were delivered during the early stages of the work, before the current SHAPE+ project and its collaborative activities were fully established. As the project progresses, this page will increasingly feature knowledge, findings, and resources created with members of the broader SHAPE+ community.
Engaging 2S/LGBTQIA+ communities in chronic pain research
Engaging 2S/LGBTQIA+ communities in chronic pain research
This presentation from the Community-Based Research Centre’s Summit 2023 introduces the use of citizen science to engage 2S/LGBTQIA+ communities in identifying priorities for chronic pain research.
Citizen science and community-driven research
Citizen science and community-driven research
This 2025 KT Canada seminar explores how citizen science can reduce barriers to participating in health research and support patients and members of the public in developing and prioritizing research questions. SHAPE+ is discussed as an example of ongoing citizen science work with 2S/LGBTQIA+ communities living with chronic pain.
Earlier presentations
Earlier presentations
These earlier presentations provide additional background on the citizen science approach that helped inform SHAPE+:
Citizen Science: An approach to engage the public and co-develop research questions, KT Connects, 2023; Watch the presentation
Citizen science as a method for engaging underrepresented communities, CHÉOS Work in Progress Seminar, 2023; Watch the presentation
Research publications
Research publications
- Citizen science as an approach for engaging underrepresented communities in codevelopment of health research
This peer-reviewed article describes how citizen science can support the meaningful involvement of communities that have historically been underrepresented in health research. It discusses the use of citizen science to work with 2S/LGBTQQIA+ communities to co-develop questions and priorities related to chronic pain. It was published in the Journal of Clinical Epidemiology.
More to come...
More to come...
We will continue adding findings, community resources, presentations, and other project outputs as SHAPE+ progresses.
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