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Phase 2: Help shape future chronic pain research

SHAPE+ is inviting 2S/LGBTQIA+ people with personal or caregiving experience of chronic pain, as well as clinicians and researchers with chronic pain expertise. Together, participants will help identify priorities for future chronic pain research.

Three masked disabled people of color chat while strolling through an outdoor courtyard. On the left, an Indigenous woman wears glasses, wrist support braces, and waist trainers paired with a off-shoulder top and wide leg pants. In the middle, a Black non-binary woman walks with a rollator and wears waist trainers with ice pack inserts over their rainbow striped dress. On the right, a Latinx non-binary person walks while using a teal functional grip cane. Photo from Disabled and Here.

Who can participate?

You may be eligible if you:

are 18 years of age or older;
identify as 2S/LGBTQIA+ or have lived, caregiving, clinical, and/or research expertise in chronic pain and/or 2S/LGBTQIA+ health;
have access to a computer, tablet, or smartphone with internet connectivity;
can communicate in written English or use an online translation tool.

What will you be asked to do?

Part 1: Share your ideas

You will:

Answer a few questions about yourself;
Review a summary of what we learned during Phase 1; and
Share your ideas in response to this prompt:

“To better understand and address chronic pain in 2S/LGBTQIA+ communities, future research should focus on…”

You do not need research experience to participate. We welcome different forms of knowledge and experience.

You can participate independently online. We will also offer two optional Zoom sessions for people who would prefer to share their ideas alongside others. These Zoom sessions will be recorded.

You may pause and return to the online activities while they remain open, and you may skip any questions you do not wish to answer.

Part 2: Organize and rate the group’s ideas

After people have shared their ideas, approximately 40 participants will be invited to:

organize the proposed research questions into related groups;
rate how important the questions are and how practical they would be to study; and
review how the questions have been organized and provide feedback.

Phase 1 is complete!

Thank you for sharing your experiences

Thank you to everyone who completed the PatientScientist.ca survey and shared their experiences with chronic pain.

We are now using what we learned during Phase 1 to help guide the next phase of the SHAPE+ study.

Explore the Phase 1 data

You can explore interactive data visualizations and see how experiences with chronic pain compare across people who completed the survey.

You can explore the data whether or not you participated in Phase 1.

Explore the Phase 1 data

To learn more about citizen science and the development of the SHAPE+ study, visit the Our Journey page or the FAQ page.

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