As the primary caregiver, supporting your neurodivergent child will require you to plan for both present and future interactions with law enforcement.
Neurodivergent individuals may respond to commands or high-stress situations in ways that are misunderstood. Therefore, it is important to prepare your child, your child's future caregivers or legal guardians, and even your neighbors to learn how to engage and advocate with law enforcement for the sake of the neurodivergent individual (adult or child) who lives with you.
To guide you in preparing for interactions involving law enforcement now AND after you die, here are a few practical, compassionate, and safety-centered tips (keep in mind these are no automatic process):
There are times that medical professionals or law enforcement may need to enter your home, but do not know what to expect. Placing a sign at the front door (refer to images) or by the entrance will help. You should also include your child's name and, if applicable, are an adult. You should also place a sign at your child's bedroom door.
TIP: Make sure these signs are obnoxiously big and colorful so it will be hard to miss.
If you are new to this topic and are struggling to understand the importance of engaging with the law enforcement, here is an article we suggest you read called, "Policing the Neurodivergent--Safely"
Request a meeting and explain to them about your concerns and introduce your child to local officers in a low-stress environment.
Try to create a check-in system with the local police where, after a period of time of no contact, they could try to reach you before performing a police welfare check.
Many departments will keep a file they can share amongst themselves called the "Community Safety Profile" (includes your child's name, diagnosis, calming strategies, triggers, and emergency contacts).
Ask your local officers if they train officers on interacting with neurodivergent individuals. If not, advocate their need to undergo Crisis Intervention Training (CIT).
This should include:
Medical/Diagnosis Info
Sensory Sensitivities
Communication Style
Medications and allergies
De-escalation strategies
Legal guardianship or Power of Attorney documents
Emergency Contact list
A recent photo
TIP: Keep this in both print and digital format to share with care providers and trusted individuals. Check it annually!
Use role play to explain how law enforcement might speak or act
Teach simple, clear phrases (i.e., "I have autism," "Call my caregiver," or "I need time to answer")
Help them learn when to call 911 and what information to give
Medical ID bracelet or tag (use this link to view an example)
ID card with diagnosis, communication needs, and caregiver contact info (use this link to view an example)
If applicable, use tracking apps or GPS devices if wandering is a concern
Law enforcement could attach "flags" into their emergency dispatch system (first responders have codes to inform them that the individual responds differently based on some form of medical or neurodevelopmental disorders BEFORE they arrive to the scene without necessarily needing to know what the specific case history is)
Get in writing, a document from your child's school or program stating that staff are trained and know how to contact law enforcement (if needed) and what supports your child needs
Include law enforcement plans in IEPs or behavioral plans
Use a Special Needs Attorney to set up:
A guardianship (if your child is legally incompetent)
A special needs trust (to preserve the government benefits)
CAUTION: Make sure the designated guardian understands how to advocate for your child with law enforcement.
This is an informal (but vital) document describing your child's:
Routines
Triggers and calming strategies
How they express distress or confusion
Preferences, values, and safety concerns
Law enforcement interaction guidance
TIP: Keep this with other legal documents you may have and update it annually.
Educate them on:
De-escalation methods
How to interact with the police on your child's behalf
Emergency plans and communication scripts
Best way to handle hygiene needs in public settings
Some cities allow you to:
Voluntarily register your child with police/fire departments
Enroll in vulnerable person registries (example in Fontana, California)
CAUTION: There are no single, nationwide or state-wide, database to register vulnerable people and could even take on different names (i.e., "Safe at Home" program in California).
Ensure emergency responders AND courts can access:
Guardianship orders
Durable Power of Attorney (if deemed appropriate)
Advanced Medical Directives
Autism Safety Project (Autism Speaks): Safety information for 1st responders
Local Autism Societies: Often provides training to police
Be Safe the Movie : A tool to teach teens/young adults how to interact safely with police
Smart911.com: Allows you to create a safety profile linked to your phone number
National Autism Association's Meet the Police Toolkit: Free to download guide for parents/caregivers concerned about the safety of a loved one who has autism
ADVOCATE to your local or state law enforcement to create a symbol similar to the Butterfly symbol placed on Maryland's driver licenses (refer to YouTube video above for more information).
By having the foresight to plan for some form of police interactions--both now and in the future--it can drastically reduce the chances of any misunderstanding or harm befalling your child. Ultimately, the goal of this planning process is not to prepare your child to "fit in society," but to prepare the world to understand and protect them.