hundred eighty-three patients responded, and six themes were identified: kidney-related health issues (n = 121); comorbidities and quality of life (n = 162); quality and cost of healthcare (n = 84); no concerns (n = 40); family and support systems (n = 24); and lifestyle changes including less energy (n = 22). These themes are reported in Table 2, and examples of patient responses are provided in Table 4.Patients expressed concerns about kidney failure and how long their transplants will last. Several responses were variants of “failure of the transplant.” However, for some, the concern was not if graft loss would occur but rather when. One reported the “fear of future unknown, how long will my kidney last,” and another wrote “not knowing how long my kidney will perform and if my health will deteriorate again.” Patients also expressed concerns about what would happen after their transplant failed. Many commented specifically on returning to dialysis, including “having to go on dialysis once this kidney loses function”, and “never want dialysis again.” Others were concerned about a second transplant, e.g., “be able to receive another transplant when needed.”A predominant concern was for comorbidities related to kidney disease and quality of life. Patients often noted a particular comorbidity that they either currently have or could develop in the future. Many answered solely “diabetes.” Other conditions mentioned included high blood pressure, pain, cancer, recurrent urinary tract infections, and heart disease. Patients also described symptoms, e.g., “pain, numbness, balance, and coldness.”A large portion of participants reported improvements in their quality of life in the first open-ended question, and many used this space to express concerns about maintaining it. Several responses were close variants of “staying healthy,” and one recipient wrote he or she wanted to “continue to live an active high quality life.” Another responded: “to be able to do the things I did before. Do stuff with my grandchildren and friends. Hang out laundry outside, go where I want to go.” Another included the concern of “being able to do what I want without pain.” Others expressed concern about the risk of hospitalization, e.g., one reported “never know when I will go back in the hospital (frustrating).”Some of the strongest responses were related to the affordability of post-transplant care. The exclamation of one patient – “COST!!!!” – may reflect the strain that transplant-related financial difficulties can place on patients and their families. Frequent responses within this theme were short variants of “the cost.” Another patient wondered rhetorically: “How much all of it will cost?!” Financing, including insurance, was another worry; e.g., “insurance, insurance, insurance.” Responses included “rejection of insurance,” “losing my health insurance,” and “insurance and its possible disruption to the best healthcare.Others were concerned about the quality of their healthcare. One noted “I just want the future level of care to continue as it is at present,” and another recognized potential changes in the long-term: “how will my health care be different in 10 to 20 years.”Participants also commented on the significant impacts a transplant can have on family structure and roles. These responses were often imbued with emotion, and some expressed concern about how their future care would affect their families; e.g., “I know my transplanted kidney will not last forever. So I’m most concerned about getting sick again and going through dialysis and another surgery and the impacts it will have on my family now that I have a child.” A few mentioned the possibility of becoming a burden; e.g., “I do not wish to become a burden on my family,” and another said, “I’m sure they [his/her grown children] would like to move out & have a normal life but feel quite guilty trying to help take care of me & help with all the bills.” One reported the concern “being taken care of.” Other patients were concerned about the opposite role - being able to support their families, e.g., “not being there for my family” and “not being able to take care of my family.”Patients also mentioned concerns related to lifestyle changes. Some noted the desire to be more mobile, e.g., “getting to walk again” or have more energy, such as “wish I had more energy.” Others were concerned with their ability to work; one wondered “How will my finances be managed in the future if my transplant kidney fails and I cannot work as [a] mechanic?”The final open-ended question asked: “Is there something we didn’t ask you that you wish we had? If so, please tell us what it is.” One hundred seventy-one patients responded. Most respondents wrote “no” (n = 115), indicating that they did not have anything to add. Of the patients who included additional comments, four themes were identified: post-transplant care (n = 17); more communication and information (n = 11); medications (n = 7); and future of care and anxiety about their health (n = 5). These themes are reported in Table 2, and additional examples of responses are provided in Table 5.Many of these themes overlap with previous questions or report an individual recipient’s concern with their own care. Notably, some wished for more information from their providers and more communication. One patient wrote: “didn’t explain all the after effects in