at facility (laptop, web-based, etc.) Database collection and storage: Access, SQL Server, SAS Data Analysis Data analysis software: SPSS, SAS, Access Quality assurance: Validity checks, Double-checking of assigned codes, Comparison/verification between multiple data sources, Clinical review, Timeliness Data use and analysis: Routine statistical monitoring, Public health program evaluation, Baseline rates, Rates by demographic and other variables, Monitoring outbreaks and cluster investigations, Time trends, Time-space cluster analyses, Observed vs. expected analyses, Epidemiological studies (using only program data), Identification of potential cases for other epidemiologic studies, Education/public awareness, Prevention projects, Survival analysis System Integration System links: Link case finding data to final birth file, National Death Index; Death and Fetal Death Records; Laboratory Records Funding Funding source: 100% Other (Intramural CDC funding) Other Web site: Surveillance reports on file: MACDP 40th Anniversary Surveillance Report Additional information on file: CDC/BPA Defect Code; Including prenatal diagnoses in BD monitoring Other comments: The 40th Anniversary Surveillance Report was published:Correa A, Cragan JD, Kucik JE, et al. Reporting birth defects surveillance data 1968-2003. Birth Defects Research Part A. 2007;79(2):65-186. Contacts Janet D. Cragan, MD, MPH Centers for Disease Control and Prevention 4770 Buford Hwy., MS S106-3 Atlanta, GA 30341-3717 Phone: 404-498-3807 Fax: 770-488-3263 Email: JCragan@cdc.gov Laura J Pabst, MPH Centers for Disease Control and Prevention 4770 Buford Hwy., MS S106-3 Atlanta, GA 30341-3717 Phone: 404-639-6082 Fax: 770-488-3263 Email: LNW9@cdc.gov STATE BIRTH DEFECTS SURVEILLANCE PROGRAM DIRECTORY S132 Birth Defects Research 111: S1-S180 (2019) Colorado Colorado Responds to Children with Special Needs Section (CRCSN) Purpose: Surveillance, Research, Referral to Services, Referral to Prevention/Intervention Services Partner: Local Health Departments, Hospitals, Environmental Agencies/Organizations, Advocacy Groups, Universities, Community Nursing Services, Early Childhood Prevention Programs, Legislators Program status: Currently collecting data Start year: 1988 Earliest year of available data: 1989 Organizational location: Department of Health (Vital Statistics, Center for Health and Environmental Data (CHED)) Population covered annually: 63,455(2018) Statewide: Yes Current legislation or rule: Colorado Revised Statutes (CRS) 25-1.5-101.25-1.5-105 Legislation year enacted: 1985 Case Definition Outcomes covered: Structural birth defects, fetal alcohol syndrome,selected genetic and metabolic disorders; muscular dystrophy;selected developmental disabilities; very low birth weight (less than 1500 grams);others with medical risk factors for developmental delay. Pregnancy outcome: Livebirths (All gestational ages and birth weights), Fetal deaths - stillbirths, spontaneous abortions, etc. (All gestational ages, Less than 20 weeks gestation, 20 weeks gestation and greater) Age: Up to the 5th birthday (up to 10th birthday for fetal alcohol syndrome) Residence: Events occurring in-state- or out-of-state Colorado residents Surveillance Methods Case ascertainment: Passive case-finding with case confirmation Vital records: Birth certificates, Death certificates, Fetal birth certificate Other state based registries: Newborn hearing screening program, Newborn metabolic screening program Delivery hospitals: Disease index or discharge index, Specialty outpatient clinics Pediatric & tertiary care hospitals: Disease index or discharge index, Specialty outpatient clinics Third party payers: Medicaid databases Other specialty facilities: Cytogenetic laboratories Other sources: Physician reports Case Ascertainment Conditions warranting chart review in newborn period: Any chart with selected defects or medical conditions (i.e. abnormal facies, congenital heart disease), Selected chart reviews for prenatal to age 3 (28 conditions), minimal active case ascertainment data sources Coding: ICD-9-CM/ICD-10-CM, Program specific 'extended' code for added detail: 9CM and 10CM Data Collected Infant/fetus: Identification information (name, address, date-of-birth, etc.), Demographic information (race/ethnicity, sex, etc.), Birth measurements (weight, gestation, Apgars, etc.) Mother: Identification information (name, address, date-of-birth, etc.), Gravidity/parity, Pregnancy/delivery complications, Family history Father: Identification information (name, address, date-of-birth, etc.), Demographic information (race/ethnicity, sex, etc.) Data Collection Methods and Storage Data collection: Printed abstract/report submitted by other agencies (hospitals, etc.), Electronic file/report filled out by staff at facility (laptop, web-based, etc.), Electronic file/report submitted by other agencies (hospitals, etc.), 99% of data are collected in electronic format Database collection and storage: SQL-web based Data Analysis Data analysis software: Epi-Info, SAS, Access, Arcview (GIS software) ; Mapmarker, Tableau Quality assurance: Re-abstraction of cases, Comparison/verification between multiple data sources, Timeliness, Records linkage and de-duplication Data use and analysis: Routine statistical monitoring, Public health program