Embedded Files
Social Media Communities/Hashtags
Found on many platforms, including Twitter, Instagram, Mastadon, & TikTokSocial Media Communities/Hashtags
#pwME
Social Media Influencers
Social Media Influencers
Whitney Dafoe - Blog | Instagram | Facebook | Twitter
Patient Advocate, Photojournalist
Brianne Benness - Medium | Twitter
Patient Advocate, Journalist
Jaime Seltzer - ME-pedia | Twitter
Patient Advocate, Director of Scientific and Medical Outreach
Hannah Davis - Twitter | Patient-Led Research Collaborative
Long Covid Patient Advocate
David Tuller - UC Berkeley | ME-pedia | Twitter
Doctor of Public Health and Journalism
David Putrino - Putrino Lab | Twitter
Physical Therapist with PhD in Neuroscience
If you are aware of an ME/CFS-related Hashtag or Influencer that has a strong following with significant community involvement that should be included on this list, please submit their information and links to mecfssocial@gmail.com
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