is a leader at Spastic Paraplegia - Centers for Excellence Research Network  (SP-CERN).  They have eleven locations across America to research and assist those living with spastic paraplegia.  Of these eleven, sadly, none are in California!   SP-CERN received $8.4 million for 5 years of research so we can expect great things to be coming here.  Hopefully they can set up a California clinic.

This site has a ton of great links.  I wasn't going to copy them all - just use the link.

created his drug company Akava Therapeutics.  He is furthering research with Dr. Ozdinler on NU-9s - now called AKV-9.  The FDA cleared AKV-9  for clinical trials. It has proven successful for ALS and Alzheimers Disease.  But that's not all...

AKV9 works by targeting the accumulation of misfolded proteins, a core issue in neurodegenerative diseases like ALS and Alzheimer's, helping cells clear these toxic protein clumps, improving neuron health, and restoring cellular machinery like the ER and mitochondria, though the exact binding site is still being explored. It helps the cell's recycling system (lysosomes) break down harmful protein aggregates, rather than just preventing folding, by facilitating their removal and improving cellular structure.  It may also work for other diseases so fingers are crossed.

At the 2025 Conference, Dr. Bass mentioned that Dr. Piermarini was writing a paper to be published soon about their research.  Here is that research dated 12/15/2025 from Drexel NEWS.