Gaten Matarazzo - Cleidocranial dysplasia
Gaten Matarazzo. Known for his famous role as "Dustin" in Stranger Things, Matarazzo was born with a genetic condition called CCD. The hit show’s creators, Matt and Ross Duffer, chose to incorporate aspects of CCD into Dustin’s character to help raise awareness about the condition.
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By Evelyn Cuzzolino
Graphics By Fatima Mirza, Asia Krishnan, and Bernardo Sanchez Diegoperez
Known for his famous roles in Grey’s Anatomy and Euphoria as the characters “Mark Sloane” and “Cal Jacobs,” Dane was diagnosed with a rare condition called ALS. He has been very open online, discussing how it has shaped his and his family’s lives to help bring awareness and funding to ALS. Through advocacy, Eric Dane continues to bring visibility to a condition that often progresses in the dark, quickly and rapidly.
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By Evelyn Cuzzolino
Graphics By Fatima Mirza, Asia Krishnan, and Bernardo Sanchez Diegoperez
Known as one of the most influential figures in film and humanitarian work today, Jolie was diagnosed with a pathogenic BRCA1 genetic mutation condition associated with Hereditary Breast and Ovarian Cancer Syndrome (HBOC). Jolie’s public discloser of her preventative double mastectomy has influenced women globally, leading to a surge in awareness and genetic testing for hereditary cancer syndrome.
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By Evelyn Cuzzolino
Graphics By Fatima Mirza, Asia Krishnan, and Bernardo Sanchez Diegoperez
Known for her many hit songs, Sia was diagnosed with a hereditary connective-tissue disorder called EDS. Since 2013, she has brought worldwide attention to a condition that is widely under-diagnosed and misunderstood. By speaking up about her chronic pain, fatigue, and loneliness, Sia has helped reduce the stigma around invisible disabilities.
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By Evelyn Cuzzolino
Graphics By Fatima Mirza, Asia Krishnan, and Bernardo Sanchez Diegoperez