In a patient with a diagnosis that may increase the likelihood of cognitive and/or functional impairment (e.g., dementia, stroke, severe mental illness, head injury):
Assess the patient’s level of competence in the context of the decision(s) that the patient needs to make, recognizing that higher-risk decisions require higher cognitive capacity
Explain the purpose of the assessment and attempt to gain permission before you begin the assessment
Include other professionals when appropriate
In an otherwise well patient with subtle changes in function (e.g., family concerns, medication errors, repetitive questions, decline in personal hygiene):
Perform an appropriate assessment of cognitive and functional abilities
Refer for further assessment when necessary
When a patient is making high-stakes care decisions (e.g., surgery/no surgery, resuscitation status) think about the need to assess their decision-making ability.
When capacity assessment is required, actively assess the patient’s ability to understand, appreciate, reason, and express a choice.
When impaired decision-making ability is identified, attempt to establish severity, reversibility, and duration in order to plan treatment and regular reassessment.
When a patient refuses to participate in capacity assessment:
Document their refusal
Continue to engage in the provision of safe care that is acceptable to the patient
Revisit the assessment when indicated
Pursue the need for a substitute decision maker when necessary
Mental capacity implies a clinical status established by a healthcare professional
Capacity is decision-specific (not global), and may change over time, and in the context of specific domains (medical, cognitive, functional)
Mental competency refers to a legal status judged by a legal professional
Situation-specific (care for self, sign out AMA, stand trial, sign a POA, change a will, financial decisions)
May be competent to make care decisions but not financial decisions
For consent to be considered valid:
Must be voluntary (without duress/coercion)
Patient must have the mental capacity to consent
Understands nature of proposed options, anticipated effect of options, and consequences of refusing
Patient must be properly informed
Diagnosis, proposed investigation/treatments, chance of success, alternatives, consequences of refusing
Frame as collaborative effort to ensure patient's wises are honored and safety is protected (not punitive)
Cognitive screening for cognitive decline (MoCA, MMSE)
Functional assessment (eg. Katz Index of Independence in Activities of Daily Living)
Capacity and competence
Clinical interviewing
Understand information relevant to the decision
Cognitive ability to remember the information long enough to make the decision
Ask the patient to explain the nature of the condition/treatment/alternatives
Appreciate how the information applies to their own situation (ie. insight)
Reason / compare options and infer foreseeable consequences
Weigh up information relevant to the decision or lack of decision
Possible outcomes of treatment, alternatives, lack of treatment
Realistic expectations
Choice: Express their decision that is reasonable stable/consistent over time in the absence of new information
Collateral information
Further assessment
Integrated multidisciplinary approach when appropriate
Psychiatry
Occupational therapy (on-road assessment, kitchen-cooking assessment)/physical therapy
Social work
Neuropsychology
Consider reversible causes
Medication review (anticholinergics, benzodiazepines, opioids, polypharmacy)
Laboratory testing: CBC, Electrolytes (Sodium, Calcium, BUN/creatinine, Glucose), ALT , TSH, vitamin B12, folate; consider syphilis, HIV, urinalysis
Depression screening (Geriatric Depression Scale)
Delirium assessment (Confusion Assessment Method)
Brain imaging (MRI or CT head to rule out structural causes)
Advance Care directive (Living Will) prior to onset of impairment or early in progressive conditions
Substitute decision maker
If not assigned, by hierarchy:
Guardian appointed by the court
Power of Attorney for personal care
Representative appointed by Consent and Capacity Board
Spouse, common-law spouse or partner
Child (if >16yo) or parent (custodial)
Parent with right of access only (non-custodial parents)
Brother or sister
Any other relative
Office of the Public Guardian and Trustee
References: