Validation Publications

Sheppard, JJ, Hochman, R. & Baer, C. (2014) The Dysphagia Disorder Survey: Validation of an assessment for swallowing and feeding function in developmental disability. Research in Developmental Disability, 35(5), 929-942.

Sheppard, JJ, Malandraki, GA, Pifer, P, Cuff, J, Troche, M, Hemsley, B, Balandin, S, Mishra, A, Hochman, R, (2017) Validation of the Choking Risk Assessment and Pneumonia Risk Assessment for adults with intellectual and developmental disability. Research in Developmental Disability, 69C 61-76 (2017)

Additional Resources

Arvedson, J. C. (2008). Assessment of pediatric dysphagia and feeding disorders: Clinical and instrumental approaches. Developmental Disabilities Reseach Reviews, 14, 118-127.

Arvedson, J. C., Rogers, B., Buck, G., Smart, P., & Msall, M. (1994). Silent aspiration prominent in children with dysphagia. International Journal of Pediatric Otorhinolaryngology, 28 (2-3), 173-181.

Balandin, S., Hemsley, B., Sheppard, J. J., & Hanley, L. (2008). Dysphagia Disorders Survey and SWAL-QOL: Mealtime assessment for older adults with cerebral palsy. Journal of Intellectual Disability Research, 52, 783.

Bell, K. L., Boyd, R. N., Tweedy, S. N., Weir, K. A., Stevenson, R. D., & Davies, P. S. W. (2010). A prospective, longitudinal study of growth, nutrtion and sedentary behavior in young childrwen with cerebral palsy. BMC Public Health, 10, 179.

Benfer, K. A., Weir, K. A., Bell, K. L., Ware, R. S., Davies, P. S. W., & Boyd, R. N. (2012). Longitudinal cohort protocol study of oropharyngeal dysphagia: relationships to gross motor attainment, growth and nutritional status in preschool children with cerebral palsy. BMJ open, 2(4), e001460.

Calis, E., Veugelers, R., Sheppard, J. J., Tibboel, D., Evenhuis, H. M., & Penning, C. (2008). Dysphagia in children with severe generalized cerebral palsy and intellectual disability. Developmental Medicine & Child Neurology, 50, 625-630.

Cass, H., Wallis, C., Ryan, M., Reilly, S., & McHugh, K. (2005). Assessing pulmonary consequences of dysphagia in children with neurological disabilities: When to intervene? Developmental Medicine & Child Neurology, 47, 347-352.

Cichero, J. A. Y., & Murdoch, B. E. (Eds.). (2006). Dysphagia, Foundation, theory and practice. New York: John Wiley & Sons.

Delaney, A. L., & Arvedson, J. C. (2008). Development of swallowing and feeding: Prenatal through first year of life. Developmental Disabilities Reseach Reviews, 14(2), 105-117.

Gisel, E. (2008). Interventions and outcomes for children with dysphagia. Developmental Disabilities Reseach Reviews, 14(2), 165-173.

Groher, M. (1992). The detection of aspiration and videofluoroscopy. Dysphagia, 9(3), 147-148.

Lefton-Greif, M., & Arvedson, J. C. (2007). Pediatric feeing and swallowing disorders: State of health, population trends, and application of the International Classification of Functioning, Disability and Health. Seminars in Speech and Language, 28(3), 161-165.

Nadon, G., Feldman, D., & Gisel, E. (2013). Feeding issues associated with the Autism Spectrum Disorders. In M. Fitzgerald (Ed.), Recent Advances in autism Spectrum Disorders (Vol. 1). Retrieved from www.intechopen.com/books/recent-advances-in-autism-spectrum-disorders-volume-i/feeding-issues-associated-with-the-autism-spectrum-disorders.

Rogers, B., Stratton, P., Msall, M., Andres, M., Champlain, M. K., Koerner, P., & Piazza, J. (1994). Long-term morbidity and managaement strategies of tracheal aspiration in adults with severe developmental disabilities. American Journal on Mental Retardation, 98(4), 490-498.

Rubin, I. L., & Crocker, A. C. (Eds.). (2006). Medical Care for Children & Adults with Developmental Disabilities, Second edition. Baltimore: Paul H. Brookes Publishing.

Samuels, R., & Chadwick, D. D. (2006). Predictors of asphyxiation risk in adults with intellectual disability and dysphagia. Journal of Intellectual Disability Research, 50, 362-370.

Sheppard, J. J. (1991). Managing dysphagia in mentally retarded adults. Dysphagia, 6, 83-87.

Sheppard, J. J. (1995). Clinical Evaluation and Treatment. In S. R. Rosenthal, J. J. Sheppard & M. Lotze (Eds.), Dysphagia and the Child with Developmental Disabilities (pp. 37-75). San Diego: Singular Publishing Group.

Sheppard, J. J. (2002). Dysphagia Disorder Survey and Dysphagia Management Staging Scale (adult and pediatric applications, Users manual (First edition ed.). Lake Hopatcong: Nutritional Management Associates.

Sheppard, J. J. (2002). Swallowing and feeding in older people with lifelong disability. Advances in Speech-Language Pathology, 4(2), 119-121.

Sheppard, J. J. (2006). Developmental disability and swallowing disorders in adults. In J. A. Y. Cichero & B. E. Murdoch (Eds.), Dysphagia: Foundation, theory and practice (pp. 299-318). London: Wiley & Sons Publications.

Sheppard, J. J. (2010). Intellectual and developmental disability. In H. N. Jones & J. C. Rosenbek (Eds.), Dysphagia in Rare Conditions, An encyclopedia (pp. 295-308). San Diego: Plural Publishing.

Sheppard JJ, Berman L, Kvietok CM, Kratchman R: A dysphagia program for the developmentally disabled.NY Med Q 7: 19–23, 1987

Sheppard, J. J., & Hochman, R. (1988). Dysphagia disorders in a large residential setting. Washington, D.C.

Sheppard, J. J., & Hochman, R. (1988). Screening large residential populations for dysphagia. Paper presented at the American Academy for Cerebral Palsy and Developmental Medicine, 42nd Annual Meeting, Toronto, Canada.

Sheppard, J. J., & Hochman, R. (1988). Surveying dysphagia disorders in a residential population: Implications for staff allocation. Paper presented at the American Association on Mental Retardation 112th Annual Meeting, Washington DC.

Sheppard, J. J., & Hochman, R. (1989). Clinical symptoms of dysphagia in mentally retarded individuals. American Speech Language Hearing Association Annual Convention.

Sheppard, J. J., Hochman, R., & Baer, C. (2014). The Dysphagia Disorder Survey: Validation of an assessment for swallowing and feeding function in developmental disability. Research in Developmental Disabilities, 35(5), 929-942.

Sheppard, J. J., Liou, J., Hochman, R., Laroia, S., & Langlois, D. (1988). Nutritional correlates of dysphagia in individuals institutionalized with mental retardation. Dysphagia, 3, 85-89.

Sheppard, J. J., & Malandraki, G. A. (2014). Pediatric dysphagia. In G. Mankekar (Ed.), Swallowing Diseases, Diagnosis and management. New York: Springer.

Bronwyn Hemsley, Joanne Steel, Justine Joan Sheppard, Georgia A. Malandraki, Lucy Bryant, and Susan Balandin: Dying for a Meal: An Integrative Review of Characteristics of Choking Incidents and Recommendations to Prevent Fatal and Nonfatal Choking Across Populations. American Journal of Speech Language Pathology, 28, 1283-1297

J Sheppard, B Hemsley, S Balandin: Using risk assessment screening to determine need for dysphagia precautions. Journal of Intellectual Disability Research, 2016

J Sheppard, B Hemsley, S Balandin 2016 Journal of Intellectual Disability Research, 60, 7-8

Shaylee Hilton Sp Path (Class I Hons), Justine Joan Sheppard PhD, Bronwyn Hemsley Ph D (2016): Feasibility of implementing oral health guidelines in residential care settings: views of nursing staff and residential care workers. Applied Nursing Research 30, 194-203

Bronwyn Helmsley, Susan Balandin, Justine Joan Sheppard, Andrew Georgiou (2015): A call for dysphagia-related safety incident research in people with developmental disabilities 99-103

B. Hemsley, S. Balandin;J. Sheppard; (2014) Dysphagia-related safety for adults with developmental disabilities: restrictions, risk and complacency 27, 314

Susan Balandin, Bronwyn Helmsley, Leah Hanley, Justine Joan Sheppard (2009): Understanding mealtime changes for adults with cerebral palsy and the implications for support services. Journal of Intellectual and Developmental Disability, 34,197-206

Malandraki, G. C., Friell, K., Sheppard, J. J., & Gordon, A. (Submitted 2014). Connectivity of swallowing network areas in five children with acquired or congenital hemiplegia with and without dysphagia: A pilot study. Paper presented at the Society for Neuroscience Nanosymposium, Washington DC.

Mishra, A., Sheppard, J. J., Rajappa, A., Gordon, A., & Malandraki, G. C. (2014). Feeding and swallowing behaviors in children with congenital and acquired hemiplegia. Paper presented at the New York State Speech, Language, Hearing Association, Saratoga Springs, NY.

Sheppard, J. J. (2006). Developmental disability and swallowing disorders in adults. In J. A. Y. Cichero & B. E. Murdoch (Eds.), Dysphagia: Foundation, theory and practice (pp. 299-318). London: Wiley & Sons Publications.

Malandraki, G.A., Roth, M., & Sheppard, J.J. (2014). Telepractice in pediatric dysphagia: A case study. International Journal of Telerehabilitation, 6(1), 3-16.

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