Complex Care and Disability Home
Complex Care and Disability Home
Hi all,
Please refer to this google doc to see all the submissions regarding our CMC/CYSHCN population at PAS 2026 this year! See you all in Boston!
https://docs.google.com/document/d/1Eq5jG-6qLMbAR0LiB98soBY6RpBBbwPQNWs67ojYj8Y/edit?tab=t.gpahkh1lxwyd
Thanks
Complex Care and Disability SIG Co-Chairs
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Dear Complex Care Community,
The Academic Pediatric Association (APA) Special Interest Groups (SIGs) are currently accepting nominations for new SIG Co-Chairs. There will be one co-chair vacancy in the Complex Care and Disability SIG this year.
If you’re interested in shaping national collaboration, scholarship, and advocacy in pediatric complex care and disability, this is a wonderful opportunity to step into a leadership role. You do not need to be a physician to apply, and we strongly encourage individuals with lived experience to consider applying.
SIG Co-Chair roles are typically 2–3 year terms, allowing for leadership continuity and meaningful program development.
Process: You may self-nominate or nominate a colleague. Nominations are being accepted now until March 16, followed by a vote among APA membership.
Eligibility: Applicants must be APA members.
Deadline: March 16, 2026.
Learn more about APA SIGs:
https://www.academicpeds.org/groups-networks/special-interest-groups/
Apply or nominate here:
https://acpa.memberclicks.net/2026-sig-chair-nominations#!/
In addition, please stay tuned for more information about the upcoming PAS Meeting (April 24–27, 2026, Boston, MA). The Complex Care and Disability SIG meeting will take place on Monday, April 27 from 1:00-2:30pm ET. We are also planning a SIG social gathering on Sunday — details to follow.
Please feel free to reach out to any of the current co-chairs with questions.
Best,
Camila, Charu, Katie, and Marie
APA Complex Care and Disability SIG Co-Chairs
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Hi all,
The Pediatric Academic Societies (PAS) annual meeting is in Boston MA, April 24-27, 2026! You can register here.
As your Academic Pediatric Association (APA) Complex Care & Disability Special Interest Group (SIG) Co-Chairs, we are responsible for facilitating our SIG meeting and promoting programming related to the care of children with medical complexity at the conference. Stay tuned for communications about a complex care "track" with sessions of interest to our community, as well as a trainee/early career "meet and greet". For now, as everyone starts to make travel plans, we wanted to flag these dates:
Sunday April 26 evening: SIG Social (details and RSVP request to follow)
Monday April 27, 1-2:30pm: SIG Meeting
We are thrilled that Dr. Lisa Iezonni and Dr. Andrea Schwartz will be co-facilitating a dynamic session on "Preparing the Future Workforce to Care for Children with Medical Complexity and Disability: Drawing on Insights from Disability Research and Geriatrics"
We will be in touch with more details! Please don't hesitate to reach out with any questions or ideas in the meantime.
Take care,
Katie
Camila Cribb Fabersunne, Kathleen Huth, Marie Pfarr, Charu Sehgal
APA Complex Care & Disability SIG Co-Chairs
UPCOMING WEBINAR: Medical Neglect and Medical Child Abuse in Children with Medical Complexity
Hello all,
Please join us for a joint webinar through the Child Abuse SIG and Complex Care SIG entitled: “When Complexity Clouds Concern: Navigating Medical Neglect and Medical Child Abuse in CMC” on TUESDAY, FEBRUARY 10, 3-4PM EST.
“Medical Neglect (MN) and Medical Child Abuse (MCA) concerns are more complicated when a child has a Complex Medical Condition (CMC). Providers can struggle to understand what MN and MCA are in this population and how best to respond to concerns. In this hour-long webinar, Dr. Ross Cleveland (Dana-Farber Cancer Institute/Boston Children’s Hospital) will discuss what makes these cases so complicated, ways to conceptualize MN and MCA in CMC, and share potential strategies to resolution of concerns. There will be case-based and interactive discussion as well as time for Q&A. Discussion may be helpful to general and specialty pediatricians, please share invitation with anyone who may be interested.” You can right-click the links below to register on the Event Page and to access the Zoom Link.
Event Page: Medical Neglect vs Child Abuse in CMC Webinar - Academic Pediatric Association
Zoom Link: https://zoom.us/meeting/register/x-Q2y1bIR-iY0_mrtqGGGg
Affinity Group Updates!
Do you want to join or lead an Affinity Group? Where are our Affinity Groups today since we first launched them in 2025? Some have grown and evolved. Some are ready to sunset. And new ones have emerged as a result of membership demand. We are sharing a few updates below, but please be sure to visit the individual Affinity Group pages as well!
The Resident Education Affinity Group has changed its name to the Trainee Education Affinity Group! (This means the "magic word" to enter the site has also changed.)
The following Affinity Groups are sunsetting; however, if you are interested in rejuvenating and leading the group, please reach out to the Complex Care and Disability SIG Co-Chairs.
Social Determinants and Care Integration
Home Care
Emergency Care of Children with Complex Needs
The following Affinity Groups are recruiting new co-chairs.
Behavioral Health
Practical Practices in Complex Care
PAS 2025!
We wanted to provide some updates about the Academic Pediatric Association’s Complex Care and Disability Special Interest Group (SIG) open chair positions and our upcoming meeting at The Pediatric Academic Society meeting in Honolulu, Hawaii, on Sunday April 27 2025.
Accepting Complex Care and Disability SIG Co-Chair Nominations:
We have 2 open co-chair positions and are actively recruiting to fill both spots. Ideally, we would like to fill at least one of the co-chair positions with a person with lived experience as an individual with disabilities or a family member/caregiver.
Please include in your bio/statement of interest your experience with pediatric complex care and disabilities and how you think it would make you an effective Complex Care and Disability Co-chair.
Apply here to be a SIG Co-Chair .Applications are now open and due by March 17th. You must be a dues-paying Academic Pediatric Association (APA) member to apply.
To learn more about APA SIGs click here!
Please contact any of the current co-chairs with questions about the SIG or this opportunity.
The Pediatric Academic Society (PAS) meeting in Honolulu, HI on April 24-28, 2025, is just around the corner. The Complex Care and Disability SIG will be held on Sunday April 27, 2025 at 10:45 AM - 12:15 PM at PAS.
Please save the date!
Cara Coleman JD, MPH and Carolyn Foster MD MS will be presenting “Access to Home and Community-Based Services: Challenges and Advocacy Opportunities". We will discuss recommendations including those from this Issue Brief: “Coleman C, Grusin S, Foster C. Providing Equitable Medical Care for Children at Home: Federal Law and State Policy. Providing Equitable Medical Care for Children at Home: Federal Law and State Policy - Lucile Packard Foundation for Children's Health.
Participants will have the chance to identify actionable advocacy opportunities within our health systems and states. We will also hold a small business meeting.
Please check the PAS website for additional program details.
More details to follow as the conference draws near including complex care and disability content at PAS, and networking events including for trainees. Please also tell us if you have suggestions for a lunch, dinner or coffee meet-up location in Honolulu for our SIG members!
Sincerely,
The Current Complex Care and Disability SIG Co-Chairs: Charu Sehgal, Kathleen Huth, Emily Goodwin, Ruchi Kaushik, Meg Comeau
Welcome to the Complex Care Webpage!
The vision for this page is to provide a home page open to the general public with more detailed and specific pages accessible by "magic word" to members of the APA Complex Care and Disability SIG and Complex Care list serv.
It will both store SIG Content as well as link to content generated by individual users. Suggested uses include sharing educational resources, clinical pathways, documentation templates, complex care program information, etc.
Complex Care and Disability SIG and/or Complex Care list serv members, please post a message to the APA Community or email the list serv if you are having difficulty accessing an Affinity Groups page or using the "magic word."
Listen to the Complex Care Journal Club Podcast!
Kristie Malik, MD
Emily Goodwin, MD
Kilby Mann, MD
Katie Huth, MD, MMSc
Join the Complex Care list serv by clicking below to send an email to
Dr. Rishi Agrawal or Dr. Dennis Kuo!
(See the Listserv archives here.)
We acknowledge and thank Ishani Kaushik for her design of the APA Complex Care and Disability SIG website.