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Ideas for effective collaboration
Ideas for effective collaboration
Many autistic and non-autistic community members
prefer to engage with autism researchers when:
The group culture for autism research is accepting, inclusive and provides a sense of belonging. Having a group facilitator and group norms is important to promote safety of expression, especially if people disagree with each other.
Options for participation are provided, support is available, and accessible practices are used.
Autistic participants' viewpoints are prioritized, believed, and understood.
Autism research focuses on making a difference in the lives of autistic people and their families.
Research priorities shared by our project participants
Research priorities shared by our project participants
Medical
Medical
Autism and Long Covid
Causes of autism
Autism in families and a potential genetic link
How the autistic brain works
Gut and diet health for autistic people
fMRI studies (imaging of the brain)
Medical cause for sensory sensitivities
How autism is diagnosed
Autistic people on mushrooms or THC
Features of Autism
Features of Autism
Differences in autism across the population
Burnout, masking, code switching, etc.
Autism in non cis-white male children, specifically including women, non-binary, LGBTQ, adults, and people of color
Topics around adult autism, including challenges in and transitioning to adulthood
Specific features of autism
Autism and mental health
Autism and social interactions in dating and relationships
Vocational
Vocational
Barriers to employment
Employment supports
Barriers to getting more autistic people in the medical, research and social service fields.
Therapeutic Interventions
Therapeutic Interventions
Helpful medication
ABA for adults
Longitudinal study of outcomes and trauma from ABA; alternatives to ABA
ABA being accepting of Facilitated Communications
Early intervention
Provide tools to help autistic people with limited verbal skills communicate effectively
Systemic Implications of Autism
Systemic Implications of Autism
Poverty impact on healthcare of autistic people
Impact of how autistic people are treated based on characteristics like race or poverty
Examine underrepresented autistic populations
Rethink exclusion criteria for participation in a study so people with a range of abilities and skill level can be included
Real World Impact
What kind of accommodations help?
Autistic people involved in the research
How to be part of a better environment
Parenting and autism
More research relevant to lived, real life experience and struggles
Learn new things about autism and connect them to the autistic person's experience
Research things that make our lives easier
Ways to give sensory feedback to providers
Helping the world understand us as much as we are forced to understand them
Sensory acceptance rather than fixing
Learn about our talents and how our extra-sensory skills help the world, rather than just being annoying to neurotypical people
This project was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award EACB 24096
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