This study involves three main parts, which are typically completed in 1 in-person visit (for child evaluation and family blood draw) and 2-3 remote appointments (for parent interviews). We understand families have busy schedules, and will do our best to offer flexibility that fits your needs.
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Child Evaluation
Child Evaluation
Your child will complete an evaluation with our neuropsychologist to assess their diagnosis and cognitive abilities.
Blood Draw
Blood Draw
All participating family members will complete a blood draw so we can obtain a genetic sample.
Parent Interviews
Parent Interviews
You will complete a series of interviews with our research team about your child's development and your experience getting a diagnosis and services for your child.
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