Resources:
LPA (Little People of America) is a nonprofit organization that aids families and individuals with achondroplasia and other related diseases. You can become a member of the foundation after being diagnosed with a dwarfism condition.
The Magic Foundation works to provide families of children with disabilities information and support. The Magic Foundation works with children and families with many different conditions including Achondroplasia.
Educate yourself- learn all you can about Achondroplasia and it's affects by reading research papers and/or getting information from this website
Find a genetic counselor- there are many genetic counselors across the United States that can help create a plan for your family and give you peace of mind while dealing with a new diagnosis.
Talk to your pediatrician or your doctor- your child's pediatrician or your own healthcare provider should be a great resource throughout you or your child's Marfan journey.
Consider reading "Lives Worth Living" by Janet Cotter