Genetic Issue: Privacy in Genomics

Overview

Each person's DNA sequence includes health and other information about them and their families. Technological advances mean that it is now cheaper and easier than ever to sequence and interpret genomic information. Whether genomic information is being used for research, clinical or other uses, it is important to consider how best to ensure that individuals' privacy is respected. There are laws and policies that serve to protect the privacy of individuals' genomic information, and there is ongoing debate as to whether further measures are needed.

Consider:

• How do we protect people’s privacy? What should be private and what shouldn’t? When (if ever) is it ok to share genetic information? What kind of privacy should an individual expect?
• Provide evidence for your opinion from your sources. Understand how others might argue against you and be ready to provide counter-examples.