Message from President 主席的話

當大家都在關心長期照護的同時，我們發現有一群兒童需要長期依賴呼吸器才能維持生命

 這些兒童發病後開始使用呼吸器賴以為生，經過急症加護期的救治到恢復期的日常生活照護，家屬往往在醫療照護知識、技術、資源不足的情況下，還要兼顧兒童各項身體功能、心理復原及適當的教育，對於患童家庭而言，不論是身體、心理、精神及經濟各方面都是沉重的負擔。有鑑於此，有一群患童家屬、患者、醫生、醫護人員等，有了成立兒童家居呼吸支援會之構想。另外我們希望社區及公眾能夠對家居呼吸機和使用者的情況有更多的了解提高社會大眾對需要使用呼吸機的患者及家屬有更多的了解和關注。

While people are caring for long-term care, we found that there are children who need to live with ventilators

These children depended on ventilators since they were sick. They have been through an emergency period and still need daily care during the recovery period. Their family often needs to take care of these children’s physical, psychological and educational issues lacking in medical care knowledge, technology and resources. It’s a lot of pressure on their family physically, psychologically, spiritually and economically.  As a result, a group of patients, patients, doctors, health care professionals etc., have the idea of ​​setting up the “Paediatric Home Respiratory Support Society”.  In addition, we hope that the community and the public can know more about the situation of home ventilators and users so that the public can have more understanding and attention to patients and their families who need ventilators.