Links
ME/CFS Related Organisations
ANZMES - Associated New Zealand Myalgic Encephalomyelitis Society - https://anzmes.org.nz/
ANZMES YouTube Channel on Research - https://www.youtube.com/channel/UCoHPLvzmvhutN-qVEW32WgA
Frontiers Paediatric Primer - Frontiers in Paediatrics – ME/CFS Management in Young People
International Association for Chronic Fatigue Syndrome /Myalgic Encephalomyelitis - http://iacfsme.org/ME-CFS-Primer-Education.aspx
Fibromyalgia Research - Management Stratagies for Primary Care Providers
ME Association UK - http://www.meassociation.org.uk/
ME Support UK - https://www.mesupport.co.uk/
Videos and Articles to Watch about ME/CFS
Wendy Matthews ANZMES committee member talking about her walk with ME/CFS
A practical approach to understanding, assessing and managing ME/CFS, A webinar by Dr. Cathy Stephenson from 23 February 2022 on My Health Hub for Mobile Health. CPD point available: https://myhealthhub.co.nz/myalgic-encephalomyelitis-chronic-fatigue-syndrome-2/
Understanding the biological basis of ME/CFS. Professor Warren Tate.
https://anzmes.org.nz/what-is-me/medical-professionals/
As a part of her book release, Ros is featured in the Listener magazine in the issue of 1 September. The new Front Person of ANZMES has also been interviewed.
Doctor Ros Vallings was featured on Radio New Zealand Saturday Morning Show on 8 September.
TVNZ Good Morning Show, Tuesday 11 September
Dr Ros Vallings (ANZMES medical specialist) is interviewed about her new book “Chronic Fatigue Syndrome M.E. Symptoms, Diagnosis & Management” and about ME/CFS together with former rugby league star Richie Barnett who talks about his experience with Chronic Fatigue Syndrome.
Dunedin Forum on ME/CFS
On the 5th of August 2013 a Forum was held in the Dunedin Barnett Theater hosted by Andrew Bradstock.
The Title of the Forum was “ME/CFS. What do we know about it and how does it challenge our attitudes. Prof Warren Tate ( Dunedin researcher of ME/CFS), Heather Wilson ( ANZMES committee member), and Richie Barnett (NZ face of ANZMES) took part. There was a time of questions at the end of the forum.
www.otago.ac.nz/prodcons/groups/public/@otagopodcast/documents/audio_video/otago052726.mp4
Open Door Documentary That ANZMES helped to produce
IACFS conference 2014 San Francisco Summary by Prof Tony Komaroff
IACFS/ME Conference 2014 Summary by Rosamund Vallings
ME Association Conference, London, June 2014. Summary by Dr Rosamund Vallings. ANZMES has sponsored Dr Vallings to attend this conference and write up this report for ANZMES
2014 Stanford ME/CFS Symposium. March 19th, 2014 California Videos.
2021 conference notes
https://anzmes.org.nz/wp-content/uploads/2021/10/IACFS2021RV3.pdf
Link for useful medical information when treating COVID-19 in patients with underlying myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and severe fibromyalgia (FM)
Pediatric Case Definition for ME/CFS.
By 2006, the International Association of Chronic Fatigue Syndrome Working Group for a ME/CFS Pediatric Definition developed and published (in the Journal of Chronic Fatigue Syndrome, v. 13 n.2/3, 2006) a comprehensive “Pediatric Case Definition for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome.” The paper also included an instrument (a comprehensive questionnaire) that doctors and other professionals can use to specifically assess CFS/CFIDS/ME in children.The International Association of CFS, (now the International Association of CFS/ME) is an international group of CFS/ME researchers and clinicians. Under its auspices, a number of the leading researchers and clinicians in the field of pediatric CFS/CFIDS/ME came together to develop the definition. These included: Dr. Leonard Jason, Dr. David Bell, Dr. Charles Lapp, Dr. Karen Jordan, Dr. Kenny de Meirlier, and Dr. Alan Gurwitt (a long-time member of the Massachusetts CFIDS/ME & FM Association), along with other experts.
The entire 2006 Pediatric case definition can be accessed (along with other case definitions) at the M.E. Society for America link:
http://www.cfids-cab.org/MESA/ccpc.html
You can also download a free copy of the pediatric CFS/CFIDS/ME assessment instrument, the DePaul Pediatric Health Questionnaire at
http://www.cfids.org/bonus/pediatrictool.asp.
This 2017 article discusses the Primer written by The International Writing Group for Pediatric ME/CFS https://www.frontiersin.org/articles/10.3389/fped.2017.00121/full
Assessment and Treatment of Patients of ME/CFS: Clinical Guidelines for Psychiatrists
The Clinical Guidelines for Psychiatrists by Eleanor Stein is a good resource for clinicians who are seeking to understand the distinctions between ME/CFS and psychiatric disorders.
Please see PDF
http://sacfs.asn.au/download/guidelines_psychiatrists.pdf
Chronic fatigue syndrome/myalgic encephalomyelitis Managing CFS/ME in general practice: new ideas
This has been written by Dr Vicki Mount, General Practitioner, MBChB, Dip Paeds and Dr Ros Vallings, ANZMES medical adviser, has reviewed this article for the Goodfellow group, Auckland
https://www.goodfellowunit.org/node/468444?fbclid=IwAR2vw_yIhr6SnmXOBhi0qgrcaNI1wC8lYQqAG7XkYubovjR9zFYlNsezsPM
Health Navigator NZ Chronic Fatigue Syndrome.
Here is the link for the Navigator NZ site for ME/CFS reviewed by ANZMES Medical Adviser Dr Ros Vallings.
Physios for ME
A group of physiotherapists in the UK with a special interest in ME/CFS.
US ME/CFS Clinicians Coalition
The US ME/CFS Clinicians Coalition have launched their own webpage, see below for link to their page.
https://mecfscliniciancoalition.org/