News from LVPSG and the vulval pain community

LVPSG meeting, Saturday 14 July 2018, 11.00 am - 1.00 pm

posted Jul 9, 2018, 1:41 AM by The London Vulval Pain Support Group LVPSG

The London Vulval Pain Support Group's next meeting will be in the usual central London location on Saturday 14 July 2018, 11.00 am - 1.00 pm. Further details about us and our meetings, including meeting dates for the rest of 2018, can be found on our Meetings page on this website or you can email the group administrator at londonvps@yahoo.co.uk.

Mindful Movement meeting, Saturday 9 June 2018, 11.00 am - 1.00 pm

posted May 1, 2018, 7:13 AM by The London Vulval Pain Support Group LVPSG

A special meeting will be held in the church from 11.00 am until 1.00 pm. We may be limited as to how many can attend due to the nature of the meeting, which will involve movement on mats. Initially details will be shared among existing members of our online group and those on our mailing list, but please check here for updates. Thank you for understanding. 

LVPSG meeting, Saturday 12 May 2018, 11.00 am - 1.00 pm

posted May 1, 2018, 7:00 AM by The London Vulval Pain Support Group LVPSG   [ updated May 1, 2018, 7:06 AM ]

The London Vulval Pain Support Group's next meeting will be in the usual central London location on Saturday 12 May 2018, 11.00 am - 1.00 pm. This is a general support meeting and replaces the cancelled meeting of 19 May 2018.  

Further details about us and our meetings, including meeting dates for the rest of 2018, can be found on our Meetings page on this website or you can email the group administrator at londonvps@yahoo.co.uk.

IMPORTANT - change of date for LVPSG meeting of Saturday 19 May 2018

posted Mar 27, 2018, 4:47 AM by The London Vulval Pain Support Group LVPSG   [ updated Apr 18, 2018, 1:36 AM ]

Due to the clash with the Royal Wedding of Prince Harry to Meghan Markle, this meeting date has been cancelled. The meeting will be rearranged for another date, very probably 12th May 2018. When we have confirmation of the new date, details will be posted here and also on our Meetings page.

Thank you for your patience.  

This has been rescheduled for 12th May 2018 - General support meeting from 11am till1pm in the Crypt

LVPSG meeting, Saturday 24 March 2018, 11.00 am - 1.00 pm

posted Mar 13, 2018, 5:55 AM by The London Vulval Pain Support Group LVPSG   [ updated Mar 13, 2018, 5:58 AM ]

The London Vulval Pain Support Group's next meeting will be in the usual central London location on Saturday 24 March 2018, 11.00 am - 1.00 pm. Further details about us and our meetings, including meeting dates for the rest of 2018, can be found on our Meetings page on this website or you can email the group administrator at londonvps@yahoo.co.uk.

LVPSG meeting, Saturday 20 January 2018, 11.00 am - 1.00 pm

posted Jan 15, 2018, 5:04 AM by The London Vulval Pain Support Group LVPSG

The London Vulval Pain Support Group's first meeting of 2018 will be in the usual central London location on Saturday 20 January 2018, 11.00 am - 1.00 pm. Further details about us and our meetings, including meeting dates for the rest of this year, can be found on our Meetings page on this website or you can email the group administrator at londonvps@yahoo.co.uk.

#ItsNotInYourHead: campaign about provoked vestibulodynia

posted Oct 13, 2017, 3:15 AM by The London Vulval Pain Support Group LVPSG   [ updated Oct 13, 2017, 4:24 AM ]

The Women's Health Research Institute in Vancouver, British Columbia have just launched a campaign to raise awareness about provoked vestibulodynia.

They've made a short animated video about the campaign which you can watch below or on YouTube and there's also a Facebook page you can visit.

LVPSG meeting, Saturday 14 October 2017, 11.00 am - 1.00 pm

posted Oct 13, 2017, 2:58 AM by The London Vulval Pain Support Group LVPSG   [ updated Oct 13, 2017, 3:00 AM ]

The London Vulval Pain Support Group's next meeting will be in the usual central London location on Saturday 14 October 2017, 11.00 am - 1.00 pm. Further details about us and our meetings, including meeting dates for the rest of this year and 2018, can be found on our Meetings page on this website or you can email the group administrator at londonvps@yahoo.co.uk.

Participate in a survey concerning the vulvodynia patient experience

posted Sep 12, 2017, 3:38 PM by The London Vulval Pain Support Group LVPSG

The Vulval Pain Society would like to share with you information about an initiative to learn more about the vulvodynia patient experience. MK&A (Mark Krueger & Associates) is conducting a confidential vulvodynia patient survey on behalf of a global pharmaceutical company. This is an opportunity to elevate the patient voice by sharing your journey in order to enhance the company’s understanding of vulvodynia. As a disclosure, the Vulval Pain Society will not be paid for your participation.

Your participation in the survey is completely voluntary and all of your responses will be kept confidential. This survey will take approximately 60 minutes to complete and an honorarium of 40 GBP will be provided.
 
Survey link: https://www.surveymonkey.com/r/UK_Vulvodynia_Survey
Please complete the survey before Wednesday 27 September 2017. 
 
Should you have any comments or questions, please feel free to contact Jaclyn Nullman, MK&A associate at jnullman@mkanda.com.

Input needed for the Lichen Sclerosus Priority Setting Partnership

posted Sep 12, 2017, 2:14 AM by The London Vulval Pain Support Group LVPSG

The Lichen Sclerosus Priority Setting Partnership are looking for people to take part in a survey they are running to find out what research questions are important to patients with lichen sclerosus and health professionals who are involved with the condition.

For more information about the survey, download the LSPSP's PDF poster or visit their page on the University of Nottingham website.

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