News from LVPSG and the vulval pain community

Participants needed for study on psychological needs and support among women with vulvodynia (City, University of London, London, UK)

posted Jul 8, 2017, 12:48 PM by The London Vulval Pain Support Group LVPSG

City, University of London are looking for participants for a study on how women with vulvodynia  understand their psychological needs. To take part in the study, you will need to have a diagnosis of vulvodynia or vestibulodynia, you will need to be aged 18 or over and not have undergone menopause, and you will also need to be living in the Greater London area in the UK.

Please note that this is not an online study and data will be collected in an audio-recorded interview with the researcher at a location convenient to you.

Full details of the study are given on the Vulval Pain Society website at www.vulvalpainsociety.org/vps/index.php/research/current-research-requiring-participants/29-current-research-fb/329-eopnasawwv

LVPSG meeting, Saturday 3 June 2017, 11.00 am - 1.00 pm

posted Jun 1, 2017, 5:02 AM by The London Vulval Pain Support Group LVPSG   [ updated Jun 1, 2017, 5:07 AM ]

The London Vulval Pain Support Group's next meeting will be in the usual London location this Saturday 3 June 2017, 11.00 am - 1.00 pm. Further details about us and our meetings, including meeting dates for the rest of 2017, can be found on our Meetings page on this website or you can email the group administrator at londonvps@yahoo.co.uk.

Vulval Pain Society Workshop Liverpool 2017, Saturday 10 June 2017, 9.30 am - 3.30 pm

posted Apr 28, 2017, 5:00 AM by The London Vulval Pain Support Group LVPSG

Booking is now open for the Vulval Pain Society's next workshop, which will be held on Saturday 10 June 2017, 9.30 am until 3.30 pm. The venue will be the Liverpool Women's Hospital, Blair Bell Lecture Suite, Ground Floor, Crown Street, Liverpool, Merseyside L8 7SS.

This event is geared towards vulval pain sufferers and their partners. The cost for the day is £15 per person. This includes refreshments at the start of the day, and a sandwich, crisps and tea/coffee for lunch (half of the sandwiches will be vegetarian). Please call us if you have special dietary requirements.

Further information and details of how to book tickets can be found on the VPS website.

Vulval pain leaflet now available as an accessible web page

posted Jan 27, 2017, 10:15 AM by The London Vulval Pain Support Group LVPSG

By kind permission of the Vulval Pain Society, the VPS vulval pain leaflet is now available as an ordinary web page on this website. The purpose of this is to help those who have difficulties with the PDF leaflet and just need to be able to access information as a web page.

Alternatively, you can still listen to the vulval pain leaflet as an MP3 audio file (11 mins 8 secs).

BBC News website article on study on women's sexual pain, 25 January 2017

posted Jan 25, 2017, 7:35 AM by The London Vulval Pain Support Group LVPSG

We have just been informed of an item appearing on today's BBC News website (25/1/2017).  The article concerns a study which looks at painful sex (dyspareunia) in women, and may be of interest.

Read the women's sexual pain study article on the BBC News website

LVPSG meeting, Saturday 28 January 2017, 11.00 am - 1.00 pm

posted Jan 18, 2017, 5:27 AM by The London Vulval Pain Support Group LVPSG   [ updated Jan 18, 2017, 5:35 AM ]

The London Vulval Pain Support Group's first meeting of 2017 will be in the usual central London location on Saturday 28 January 2017, 11.00 am - 1.00 pm. Further details about us and our meetings, including meeting dates for 2017, can be found on our Meetings page on this website or you can email the group administrator at londonvps@yahoo.co.uk.

Petition launched to get pelvic pain included in UK medical student curriculum

posted May 23, 2016, 9:25 AM by The London Vulval Pain Support Group LVPSG   [ updated May 23, 2016, 9:25 AM ]

An online government petition has recently been launched to include pelvic pain in the UK university curriculum for all medical students. You may wish to consider signing the petition If you suffer from vulval pain/vulvodynia/vestibulodynia, or other pelvic pain conditions.

For the purposes of the petition, vulval pain is included as part of the pelvic pain family (see page 53 of the International Association for the Study of Pain's 2011 document Classification of Chronic Pain at http://www.iasp-pain.org/files/Content/ContentFolders/Publications2/ClassificationofChronicPain/Part_II-F.pdf).

You can read more about the petition and sign it online here on the UK government petitions website:

https://petition.parliament.uk/petitions/128528

LVPSG meeting, Saturday 30 January 2016

posted Jan 25, 2016, 5:30 AM by The London Vulval Pain Support Group LVPSG   [ updated Jan 25, 2016, 5:37 AM ]

Please note that this meeting will definitely now be going ahead in the crypt of St Cyprian's church, Glentworth Street, near Baker Street tube station in London.  The church is in the process of being renovated, but we will be able to use our usual room and facilities.  The meeting will run from 11.00 am to 1.00 pm as usual. 

Further information about the meetings can be found our our Meetings page.   

Smears without Tears: new revised smear guide now available for download!

posted Apr 2, 2015, 3:52 AM by The London Vulval Pain Support Group LVPSG   [ updated Jan 25, 2016, 5:35 AM ]

We're very happy to announce that you can now download our brand new, fully revised leaflet version of Smears without Tears, our patient's guide to making a speculum exam more comfortable. The guide offers physical, practical and psychological tips for getting the best out of smear tests and other speculum examinations and minimising any possible discomfort or distress. It's aimed chiefly at women with vulval or vaginal pain, but we think the guide may be helpful for anyone who is uncomfortable with smear tests. Smears without Tears has been jointly developed by the London Vulval Pain Support Group and the Vulval Pain Society, from whose site the guide can also be downloaded.

Download Smears without Tears: A woman's guide to making a speculum examination more comfortable

Vulval Pain Society Super Workshop, Saturday 9 May 2015, 9.00 am - 4.00 pm

posted Mar 30, 2015, 8:10 AM by The London Vulval Pain Support Group LVPSG   [ updated Apr 1, 2015, 8:36 AM ]

National UK vulval pain charity the Vulval Pain Society are holding their next Super Workshop on Saturday 9 May 2015 in the Lecture theatre, BO1, basement of The Clore Management Centre, Torrington Square, Bloomsbury, London, WC1E 7JL.

View location map for the workshop venue

Registration is at 9.00 am and the day will end at 4.00 pm.

This  event  is  geared  towards  women  with  vulval  pain  and  their partners while  health professionals  are  also  very  welcome.  It’s  a  full day  of  information  with  emphasis  on practical ways to help  in  the management  of  vulval  pain. Speakers  will  include  Dr  David  Nunns  (FRCOG  &  founder  of  the VPS),  Dr Ashish Shetty MD, Consultant in Pain Medicine, Lucia Berry, Chartered Physiotherapist specialising in women’s health and Kate Moyle, Psychosexual Therapist.  There will also be a motivational talk from patient Bridie Nelson, plus a patient's firsthand account of surgery for pudendal nerve entrapment (PNE).

The  cost  for  the  day  is  £20  per  person;  lunch  and  refreshments  are  included. If you would  like  to  pay by cheque, please make the cheque payable to the  ‘Vulval  Pain Society’ and send it  to  Workshops,  VPS,  PO  Box  7804,  Nottingham,  NG3  5ZQ. Please write the name of each person attending on the back of the cheque.

Click here to book your place

If you have any questions or you would like to know more, please call 07837 533 992. Bookings will be on a first come, first served basis as the venue is limited to 120 delegates, with priority given to sufferers and partners. Vegetarian options will be provided for the lunch and refreshments.  

IMPORTANT!  VPS regrets fees are not refundable in the event that you are not able to attend after booking.

Workshops  are  friendly  and  informal  and  all  aspects  of  vulval  health  are  discussed openly  including  issues  relating  to  the  impact  on  intimate  relationships.  Please note that there will be some slides of a graphic nature in the presentations.

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