Welcome to the London Vulval Pain Support Group!
We provide confidential support and advice for women in the London area who suffer from vulval pain, usually due to vulvodynia and vestibulodynia, but sometimes the pain may also be from another vulval condition such as:
The group started in 1994 and was active until 2000, with the present group formed in March 2003.
With a focus on the London area we aim:
- to provide mutual support in coping with the physical and emotional effects of vulval pain through meetings and our online Yahoo group
- to create greater awareness of vulval pain within the medical profession, the media and among the public
- to lobby for more research to be done into the causes of vulval pain and developing new treatments and to keep abreast of the latest information by attending medical conferences and fostering closer links with vulval pain specialists
- to encourage links with other vulval pain groups in the UK and abroad such as the Vulval Pain Society, the Cross Pennines Vulval Pain Support Group, UK Lichen Planus, the Vulval Health Awareness Campaign,the Association for Lichen Sclerosus and Vulval Health and the National Vulvodynia Association.
The group is run by committee but we take into consideration the views of all group members in the decision-making process. We are a self-funded organisation and rely on donations to cover our running costs - we charge £3 per person per meeting to cover hall hire (£5 if we have a guest speaker), but if you are unable to contribute you will still be very welcome.
We work towards increasing awareness of the LVPSG and vulval pain within the medical profession, the media and most importantly among sufferers of the condition.
We'd like to thank David Nunns, who is our medical advisor, for all his help and support.