Engelse cover van Maan ´s Ze lacht, Maar ze huilt.

 But he cries On the inside he cries    by  Stef Classens

Talk to children about Traumatic Brain Injury

Health effects of social isolation

How to deal with someone who has a brain Injury:

• Take your time.;

• Try the patient patiently.

• Know someone's (physical) capabilities and complaints;

• Look at what is still possible;

• Look at the person;

• Use subtile language;

• Be clear, therefore.

Key points

• Social isolation is not having relationships, contact with, or support from others.

• Loneliness is the feeling of being alone, disconnected, or not close to others.

• Social isolation and loneliness put a person at risk of developing serious mental and physical health conditions.

Lonely but not alone

(Words from Princess Wilhelmina). They talk about you but don't ask you anything. They don't hear you when you ask. They don't know what to do that's why they don't talk to limited people. They really don't hate you. Lots of people out there, but those people don't see you. Are you alone or lonely? I would say lonely.  I often deal with this. I also call this over-stimulation!!

Clarity

Why no images

I hardly use images, because the attention should not be on the images but on the tekst. Why is the text spread over 12 pages. In this way, the tekst is easier to read and tekst is easier to find.

The I form:

In my story I use the I-form,   because as an experienced expert I can be an example for others. 

Same place at the wrong time;

Motorist:

• Psychiatric patiënt;

• medicines;

• In divorce;

• alcohol;

• Confuse;

• At a crossroads (consequence: accident).

Moped-driver

• Administrative assistant;

• Warehouse manager;

• Sober;

Coffee;

• Bread;

• Young and determined; 

• At the  crossroads (Consequence: Lifelong suffering from the consequences of TBI).

TBI links                                   information

.  Sport is  not Always healthy;---->  awesome            

• TBI and epilepsy;--------------------------> nice

• coma;-----------------------------------> just nice

• Child with TBI;----------------------> awesome

• Couses of TBI;---------------------->nformative

• Healthcare and TBI:------------------> just nice

BRAINreADAPT effect (New)

As people with acquired brain Injury (ABI) get older, they may experience symptoms such as getting tired more quickly, or problems remembering or maintaining attention. It is often thought that this is due to getting older. While this could also be due to the BRAIN-ReADAPT effect. Researcher Nikki Thüss explains what it is and how to recognize it.

Extra Important

What is my goal?

"Living with NAH (Traumatic Brain Injury)" requires adjustment, understanding, and support—both for the person affected and their loved ones. It's a proces of leuning to cope with both visible and invisible consequences, in which peer support, professional help, and practical tips play a key role.

Epilepsy and (PNES)

Know what PNES is, click on link above

TBI

5 tips for supervisors

Tip 1: Get to know a client well

It is important for counselors to learn more about the client's situation; according to experience expert Jurre. “Get to know each other extensively and discuss what you want to achieve together. After all, guidance is mainly meant to be able to participate again, participation is a nicer word, in society. The ice will be broken in this way, and of course you can also consult the family if you cannot figure it out completely. Yet Jurre emphasizes: “Make sure you involve the client in this; this is beneficial for everyone. The distance is shorter, so that the client can be somewhat looser. In addition, keep in mind that in addition to children, you also have to work with the elderly.

Tip 2: Movement is healing; said Edwin van der Sar

  (Edwin van der Sar Foundation). That's why I often walk to the store with my supervisor. When we have reached the store and I am exhausted, I will continue in the wheelchair. ”Jurre therefore advises supervisors to bring a wheelchair (if the client has a wheelchair). "Better with it than shy!" I also often go for a walk. I try to expand the circle, but that doesn't work very well yet

Tip 3: Be careful during an seizure

Jurre has an important tip for people who witness a seizure: “If a client has a seizure, you should not talk too much about his condition. There are epileptics who (like me) can hear and see everything during a seizure, but cannot respond to it. So be careful.

Tip 4. Guidance: home care agency or self-employed person and / or informal care

This tip is for clients. There are many options for choosing guidance. Jurre opted for both a home care agency and a self-employed person. His experience is the following: "Self-employed workers are a bit more flexible and more dutiful. They often do support work but also sometimes care. Carers do, how could it be otherwise, care and sometimes guidance. It is not necessary in all cases, but because I cannot and may not stay on my own for too long because of the epilepsy, I am being cared for by 4 people. My wife is also involved in this. So I have guidance, care and the informal care of my wife. Now that my wife has passed away I have gone realize how important informal care actually is.

Tip 5. Note!

(Part 1)

Finally, he shares an important tip: never allow a client with epilepsy to bathe alone.

 (part 2)

In this period of corona, loneliness strikes especially among seniors / elderly. Do not let them muddle along, bad situations can arise. People with TBI are also quickly victims of chat tricks and / or the so-called blood donation. If you want to do something, first go to professional support

Mit Kindern über Schädel-Hirn-Trauma sprechen

Einsam, aber nicht allein

(Worte von Prinzessin Wilhelmina). Sie reden über dich, fragen dich aber nichts. Sie hören dir nicht zu, wenn du fragst. Sie wissen nicht, was sie tun sollen, deshalb sprechen sie nicht mit eingeschränkten Menschen. Sie hassen dich wirklich nicht. Viele Menschen da draußen, aber diese Menschen sehen dich nicht. Bist du allein oder einsam? Ich würde sagen einsam. Ich habe oft damit zu tun. Ich nenne es auch Reizüberflutung!

Klarheit

Ich verwende kaum Bilder, da die Aufmerksamkeit nicht auf den Bildern, sondern auf dem Text liegen sollte. Warum ist der Text auf 12 Seiten verteilt? Dadurch ist er leichter zu lesen und leichter zu finden.

Die Ich-Form:

In meiner Geschichte verwende ich die Ich-Form, weil ich als erfahrene Expertin ein Vorbild für andere sein kann.

Am selben Ort zur falschen Zeit;

Autofahrer:

Psychiatriepatient;

Medikamente;

In Scheidung;

Alkohol; Verwirrt;

An einer Kreuzung (Folge: Unfall).

Mopedfahrer

Verwaltungsassistent;

Lagerleiter;

Nüchtern;

Kaffee;

Brot;

Jung und entschlossen;

An der Kreuzung (Folge: Lebenslanges Leiden an den Folgen einer Hirnverletzung).

            TBI linken                                                      inform.

Informationen zu Hirnverletzungszusammenhängen

. Sport ist nicht immer gesund;---------------------------------> großartig

Hirnverletzung und Epilepsie;------------------------------> schön

Koma;---------------------------------------------------------> einfach schön

Kind mit Hirnverletzung;----------------------------------------> großartig

Ursachen einer Hirnverletzung;-------------------------> Informationen

Gesundheitswesen und Hirnverletzung:----------------> einfach schön

BRAINreADAPT-Effekt (Neu)

Mit zunehmendem Alter können Menschen mit einer erworbenen Hirnverletzung (ABI) Symptome wie schnellere Ermüdung oder Probleme beim Erinnern oder Aufrechterhalten der Aufmerksamkeit entwickeln. Oft wird angenommen, dass dies auf das Alter zurückzuführen ist. Es könnte aber auch am BRAIN-ReADAPT-Effekt liegen. Forscherin Nikki Thüss erklärt, was Epilepsie ist und wie man sie erkennt.

Epilepsie und (PNES)

Um zu erfahren, was PNES ist, klicken Sie auf den Link oben.

TBI

5 Tipps für Betreuer

Tipp 1: Lernen Sie den Klienten gut kennen

Für Berater ist es wichtig, die Situation des Klienten besser kennenzulernen, so der erfahrene Experte Jurre. „Lernen Sie sich intensiv kennen und besprechen Sie, was Sie gemeinsam erreichen möchten. Schließlich geht es bei der Beratung vor allem darum, wieder – oder besser gesagt: Teilhabe – am gesellschaftlichen Leben teilhaben zu können. So wird das Eis gebrochen, und natürlich können Sie auch die Familie konsultieren, wenn Sie sich nicht vollständig einig sind.“ Jurre betont jedoch: „Beziehen Sie den Klienten unbedingt mit ein; das ist für alle von Vorteil. Die Distanz ist geringer, sodass der Klient etwas lockerer sein kann. Bedenken Sie außerdem, dass Sie neben Kindern auch mit älteren Menschen arbeiten müssen.“

Tipp 2: Bewegung ist heilsam, sagte Edwin van der Sar

(Edwin van der Sar Stiftung). Deshalb gehe ich oft mit meiner Betreuerin zu Fuß zum Laden. Wenn wir dort angekommen sind und ich erschöpft bin, fahre ich im Rollstuhl weiter.“ Jurre rät Betreuern daher, einen Rollstuhl mitzubringen (sofern der Klient einen Rollstuhl hat). „Besser mit als schüchtern!“ Ich gehe auch oft spazieren. Ich versuche, den Kreis zu erweitern, aber das klappt noch nicht so gut.

Tipp 3: Vorsicht bei einem Anfall

Jurre hat einen wichtigen Tipp für Menschen, die einen Anfall miterleben: „Wenn ein Klient einen Anfall hat, sollte man nicht zu viel über seinen Zustand sprechen. Es gibt Epileptiker, die (wie ich) während eines Anfalls alles hören und sehen, aber nicht darauf reagieren können. Also Vorsicht.“

Tipp 4. Begleitung: Pflegedienst oder Selbstständige und/oder informelle Pflege

Dieser Tipp richtet sich an Klienten. Es gibt viele Möglichkeiten, eine Begleitung zu wählen. Jurre hat sich sowohl für einen Pflegedienst als auch für eine Selbstständige entschieden. Seine Erfahrung ist folgende: „Selbstständige sind etwas flexibler und pflichtbewusster. Sie leisten oft unterstützende Arbeit, kümmern sich aber manchmal auch um die Pflege. Pflegende übernehmen, wie könnte es anders sein, Pflege und manchmal auch Anleitung. Das ist nicht in allen Fällen notwendig, aber da ich aufgrund meiner Epilepsie nicht lange allein bleiben kann und darf, werde ich von vier Personen betreut. Meine Frau ist ebenfalls involviert. So habe ich Anleitung, Pflege und die Pflege meiner Frau. Jetzt, nach dem Tod meiner Frau, ist mir bewusst geworden, wie wichtig informelle Pflege tatsächlich ist.“

Tipp 5. Achtung!

(Teil 1)

Zum Schluss gibt er noch einen wichtigen Tipp: Lassen Sie einen Patienten mit Epilepsie niemals alleine baden.

(Teil 2)

In dieser Corona-Zeit trifft Einsamkeit besonders ältere Menschen. Lassen Sie sie nicht einfach so herumwursteln, es können schlimme Situationen entstehen. Menschen mit einer traumatischen Hirnverletzung werden auch schnell Opfer von Chat-Tricks und/oder der sogenannten Blutspende. Wenn Sie etwas tun möchten, suchen Sie zuerst professionelle Unterstützung.

Es gab Ein Moment gestern, als all meine Sorgen so weit weg schienen. Hören Sie „Gestern“

Coronavirus auf Englisch erklärt

Der Einfluss der COVID-19-Pandemie auf traumatische Hirnverletzungen in Trol: Erfahrungen aus einem Staat im Lockdown. Die Brain Foundation erwartet einen großen Zuwachs.

There was a moment Yesterday when all my troubles seemed so far a  away  Listen to Yesterday

Coronavirus explained in english

The influence of the COVID-19 pandemisch on Traumatic Brain Injury in Trol: experiences from a state under lock downe Brain Foundation expects a large group of new brain patients as a result of the corona virus. The virus damages the brain in various ways.

• Oxygen deficiency

Initially, it affects the patient's lungs. This can lead to a greatly reduced lung function and in the worst case even lung failure. This can cause oxygen deficiency in the brain. This causes damage in the areas of the brain that coordinate attention, memory and planning.

• Cognitive complaints after long-term IC

The fact that many corona patients were in the ICU for a long time probably also leads to more brain patients. A study previously showed that almost 60 percent of all patients who stay in IC for more than 48 hours have cognitive complaints after discharge from IC. Think of attention and memory problems, overstimulation, behavioral change or extreme fatigue.

• Viral encephalitis

There are indications that the coronavirus can cause viral encephalitis. This is because the brain has the same receptors as the lungs (the ACE receptor). Encephalitis can lead to serious brain damage.

• "We call on doctors to be alert to possible cognitive consequences in ex-corona patients, so that they can be treated at an early stage and the chance of residual symptoms can be reduced."

Merel Heimens Visser, director of the Brain Foundation

• Thrombosis

Finally, it appears that half of the corona patients who have been in the ICU develop symptoms of thrombosis. With thrombosis, the blood clots. The blood clots that form block the veins or arteries. The blood clots can form in the head, resulting in a cerebral infarction.

• Possibly a large group of new brain patients

“All this ensures that health care can expect a large group of new brain patients,” says Merel Heimens Visser, director of the Brain Foundation. "We call on doctors to be alert to possible cognitive consequences in ex-corona patients, so that they can be treated at an early stage and the chance of residual symptoms can be reduced."

• Paulien Goossens, rehabilitation doctor and affiliated with the Brain Foundation, adds:“   It is important that doctors realize that brain damage is often not apparent in the consultation room or during a short observation. The Brain Foundation therefore believes that all patients who were hospitalized with Corona should be screened with a short objective test for evidence of brain damage. 

• 
  

Not always healthy Exercise is healthy that's true; But....There are many examples that this claim is not always true. I have linked a page for you, which mainly focuses on head injuries. Sport is fun and healthy, but sport can also be unhealthy and therefore also dangerous. I don't want to advise against exercising. I hope all athletes click on the link above and read the article. Read how suddenly your life can come to a standstill after a concussion due to, for example, a shoulder to the head or a blow to the head with a hockey stick in hockey and have you ever realized what damage a header can cause. prevent concussions there. A brain contusion or permanent brain injury (NAH) cannot be ruled out, one will look at how this can be prevented. For example, intensive supervision is being considered, so that head injuries can be treated more quickly. Keep your cool until that guidance arrives. Don't forget the link!

The story of Marianne v.d. Krogt (ZZP'er in home care)

Jurre has asked me to write a piece for his website. I have been his counselor and carer for 6 years now. I provide the Personal Care not only because he absolutely cannot take care of himself, but because he suffers a lot from Tremors, spasms and an occasional epileptic fit, because of his NAH. This means that the ADL is very tiring for him and he already starts his day tired without help, it takes him almost 2 hours. In addition, it is of course downright dangerous if no one is present while showering or taking a bath. The Guidance is mainly aimed at stimulating, activating and guiding him with a message in the village, going to physiotherapy, going to the GP, going to the pedologisch, going to the dentist, etc. In addition, at the request of the physiotherapist, he is also expected to walk for at least 20 minutes a day. This to maintain his balance and condition and to breathe fresh air, this is also good for his brain. He is very intensively working on his website about NAH, he can sometimes use some support with that too. This also requires a lot of energy from him and we encourage him to tackle other issues as well. He is then, for example, active with regard to cooking and doing the shopping for that. It is therefore also very important to have a daily schedule and to ensure that he has his social contacts the 4 days a week that he is home alone. Jurre likes to philosophize and discuss matters. We as carers/supervisors now know that he can have an epileptic fit when overstimulated and stressed and can sometimes prevent this. That is why it is so important that he has a PGB. The past year has been a difficult year for him, because of the new regulations regarding the PGB. Together with him we had to put a lot of time and energy into the re-indication and that has not done his health any good. Finally, I would like to say to everyone who knows someone with NAH, treat them with respect and as fully fledged. I regularly see when I'm on the road with Jurre, that people treat him like a small child and also talk to him like that. What happened to him in his twenties could happen to all of US!

     Sincerely, Marianne

THE POOL OF LONELINESS

"The Pool of Loneliness" is small but certainly not nice;

Dear If you threaten to drown,

then you want to be saved.

I'm also about to drown in the pool of loneliness,

It's not a pleasant drowning,

so i hope you can save me!

TBI and risk for dementia

Traumatic brain Injury (TBI) is one of the most well-established risk factors for dementia – importantly, it is modifiable! By reducing the likelihood that you will have a TBI, you can reduce your chance to develop cognitive impairment. So, wear your helmet when you go out for your next bike ride; you can get exercise and protect your brain.

A TBI is caused by a blow or jolt to the head that alters normal brain function, typically measured by a loss of consciousness (getting knocked out). There is no one-to-one association between a single TBI and dementia, including Alzheimer’s disease.

Extra Important

I M P O R T A N T

What's my goal?

"Living with NAH (Acquired Brain Injury)" requires adjustment, understanding, and support—both for the person affected and their loved ones. It's a process of learning to cope with both visible and invisible consequences, in which peer support, professional help, and practical tips play a key role.