The International

Seizure Diary Consortium (ISDC)

An international collaboration led by Beth Israel Deaconess Medical Center

MISSION:

The ISDC is committed to using Big Data techniques on seizure diary databases to find new ways to help patients with epilepsy.

VISION:

Unifying multiple sources of high quality clinical seizure diary data from patient reported outcomes, biosensors, clinical trials, etc. under a single entity, and then distributing segments to investigators with proven track records - all the while preserving patient privacy and maintaining high ethical standards for data usage. In short:

Connecting the best data with the best minds, to get the best results.

CURRENT SOURCES OF BIG DATA:

NEWS:

  • 2020: site updated with a number of new publications from 2019 and 2020!
  • In press paper on seizure forecasting... stay tuned!