The International
Seizure Diary Consortium (ISDC)
An international collaboration led by Beth Israel Deaconess Medical Center
MISSION:
The ISDC is committed to using Big Data techniques on seizure diary databases to find new ways to help patients with epilepsy.
VISION:
Unifying multiple sources of high quality clinical seizure diary data from patient reported outcomes, biosensors, clinical trials, etc. under a single entity, and then distributing segments to investigators with proven track records - all the while preserving patient privacy and maintaining high ethical standards for data usage. In short:
Connecting the best data with the best minds, to get the best results.
CURRENT SOURCES OF BIG DATA:
NeuroVista
Neuropace
NEWS:
12/11/20: updated 2020 papers and abstracts
10/11/21: updated 2020 and 2021 papers and abstracts. Click above (PUBLICATIONS) to see more.