Seizure Diary Consortium (ISDC)
An international collaboration led by Beth Israel Deaconess Medical Center
The ISDC is committed to using Big Data techniques on seizure diary databases to find new ways to help patients with epilepsy.
Unifying multiple sources of high quality clinical seizure diary data from patient reported outcomes, biosensors, clinical trials, etc. under a single entity, and then distributing segments to investigators with proven track records - all the while preserving patient privacy and maintaining high ethical standards for data usage. In short:
Connecting the best data with the best minds, to get the best results.
CURRENT SOURCES OF BIG DATA:
- 2020: site updated with a number of new publications from 2019 and 2020!
- In press paper on seizure forecasting... stay tuned!