About the organization


What is our purpose?

We are an organization of volunteer adolescent/emerging adult patients with chronic conditions, parents and health providers/researchers with the purpose to advance an evidence-based research agenda on health care transition and self-management.
Who support us?
We receive in-kind support from The University of North Carolina (UNC) Children's Hospital and Transtion Program at Chapel Hill and The Renal Research Institute. The UNC TRxANSITION Prrogram team maintains our website, list serve and abstract processing systems. The University of Southern California, University of California San Francisco and University of Florida are other institutions whose faculty provide leadership to our group. All consortium members volunteer their time.
Our conference activities are partially funded by the "Got Transition" group and the Chronic Illness & Disease Conference, Transition from Pediatric to Adult Care, Baylor College of Medicine.

Healthcare Transition Research Consortium Admisnitrative Team (alphabetical order)

Cecily Betz, PhD, RN, FAAN, clbetz@aol.com from the University of Southern California – Los Angeles

Maria Ferris, MD, MPH, PhD maria_ferris@med.unc.edu from the University of North Carolina Chapel Hill

Megumi Okumura, MD OkumuraM@peds.ucsf.edu from the University of California -San Francisco 

David Wood, MD, MPH  david.wood@jax.ufl.edu from the University of Florida - Jacksonville

It all started with….
1981:Ted Ferris, kidney transplant recipient
* 2006 Maria Ferris, MD, MPH, PhD maria_ferris@med.unc.edu  founded the UNC TRxANSITION Program with seed funding from the UNC Pediatric Center for Education Research and Therapeutics (Drs. Harry Guess and Sue Tolleson-Reinhart). In 2008 partnerships where formed with North Carolina providers (Peter, Paul and Mary…really Maria, Kristi, Geri, Monique, Kristen and Irene)
2009: Partnership with researchers from Florida  (John, David, Janet and Arwa) and other organizations, states and countries.
Our Vision
To ensure that all adolescents or emerging adults with a chronic medical condition/disability and their families from all over the world, receive health care transition and disease self-management preparation by advocating for policy that supports health care systems and providers to implement evidence-based health care transition to adult-focused practices.
 
Our Mission
To embed well-planned, evidence-based health care transition from pediatric to adult-focused providers as a standard component of health services directed to adolescent/emerging adults with a chronic condition or disability. Through literacy and culturally appropriate interventions, our international research collaboration will optimize disease self-management skills and patient outcomes. 
Our Goals are to...

1) Produce or validate assessment tools that will allow health care transition readiness to be effectively monitored by health providers, while at the same time helping to guide policy.
 
2) Develop and evaluate interventions designed to improve the process of health care transition and disease self-management; ranging from those that target provider education to those that directly involve the patients and their families.
 
3) Develop practice-based health care transition research networks, optimizing longitudinal outcomes in electronic health records.