Other Groups
Local Support Groups
Fibromyalgia Fight Club: Book Discussion & Support Group
Information is power. Fibromyalgia is enigmatic and ambiguous and can be a life-altering disorder. Fight the confusion and uncertainty with information.www.meetup.com/Fibromyalgia-Fight-Club
Northern Virginia Chronic Fatigue Syndrome / M. E., Fibromyalgia, and Orthostatic Intolerance Support Group
Is an informal group in Northern Virginia. Join to get the occasional email.
http://www.cfsnova.com/
Pain Connection is a non-profit organization that aims to:
Improve the quality of life of those suffering from chronic pain.
Decrease their sense of isolation and alienation.
Increase control of their condition and treatment.
Maintain their independence.
Provides:
Monthly support groups for people with chronic pain and their families.
A speaker series on treatment modalities.
http://www.painconnection.org/
Maryland Chapter of MEAction
https://www.meaction.net/countries/usa/state-chapters/maryland/
National and International Groups
#MEAction ( also, see local chapter above )
"#MEAction is an international network of patients empowering each other to fight for health equality for Myalgic Encephalomyelitis."
NFA
"The National Fibromyalgia Association is a 501(c) 3 nonprofit organization whose mission is: To develop and execute programs dedicated to improving the quality of life for people with fibromyalgia."
The Massachusetts ME/CFS & FM Association
MassMe is a 501(c)3 founded in 1985, exists to meet the needs of patients with ME (Myalgic Encephalomyelitis), CFS (Chronic Fatigue Syndrome) or FM (Fibromyalgia), their families and loved ones. The Massachusetts ME/CFS & FM Association works to educate health-care providers and the general public regarding these severely-disabling physical illnesses. We also support patients and their families and advocate for more effective treatment and research.
https://www.massmecfs.org/
OMF
"Our mission, at the Open Medicine Foundation, is to fund and initiate collaborative and groundbreaking research into chronic complex diseases so that patients will be able to live life more fully."
SMCI
"The Solve ME/CFS Initiative (SMCI) has been the leading organization focused on myalgic encephalomyelitis (ME), commonly referred to as chronic fatigue syndrome (CFS), since being founded in 1987. SMCI envisions a world free of ME/CFS and works steadfastly to make this disease understood, diagnosable, and treatable. SMCI seeks to actively engage the entire ME/CFS community in research, works to accelerate the discovery of safe and effective treatments, and strives for an aggressive expansion of funding toward a cure."
Online Group
Phoenix Rising: Supporting people with Chronic Fatigue Syndrome ME/CFS.
Has active forums.
Useful Web Sites
The Treatment That Helped Me to Heal My CFS