NEAD in numbers

  • It is estimated that around 10,000 to 15,000 people have NEAD in the UK.

  • Around 3 in 4 people with NEAD have previously been diagnosed with epilepsy and taken anti-epileptic drugs.

  • It typically takes over five years to make the diagnosis of NEAD.

  • 1 in 5 people with NEAD have been taken to intensive care units with prolonged seizures erroneously considered as 'status epilepticus'.

  • Nearly 1 in 6 people stop having NEAs after the diagnosis has been explained.

  • 2 in 3 people with NEAD have less than half of the number of attacks three months after the diagnosis has been explained.

  • 1 in 2 people with NEAD become free of seizures with the right treatment.