Lived Experience (LX) roles originated in the voluntary and community sector, but according to Health Education England (HEE) are “now considered a ‘mainstream’ part of the mental health workforce in statutory services”, with Peer Support Workers (PSWs) forming the largest and most established group. The title Lived Experience Practitioner (LXP) is sometimes preferred, being seen as having less stigma, and being more valued and respected. In other instances, this title or Advanced LXP is used when additional skills or knowledge beyond the PSW role are required. Terminology is however not consistently used and here the term ‘Peer Worker’ (PW) is used to describe all LX roles. However much of the specific information relates only to PSWs, as this is currently the role for which the most national data is available.
Numbers of PSWs have grown considerably in the last few years (48 in 2015/16; 862 in 2019). Levels vary widely between NHS Trusts; in 2019 a few Tusts had more than 40, whilst others had none. These variations remain, with some Trusts now having a substantial PW workforce. The NHS Long Term Workforce Plan (2023) aims to have 4,730 staff in post by the end of 2023/24 and over 6,500 by 2036/37. The Mental Health Implementation Plan aims to develop the PSW role, grow supervisor capacity and capability, expand to a wider range of settings, and ensure cultural appropriateness among role holders enabling them to serve diverse populations e.g., racialised minorities, LGBTQ+.
PWs use lived experience to support people and their families receiving mental health (MH) services. PSWs form part of service users’ care teams, supporting wellbeing and “providing inspiration for their recovery”. They are located in a range of teams (general as well as specialist) including employment support, complex needs, eating disorders, forensic services, substance misuse, and family/carer peer support roles. Tasks vary depending on setting and include for example, one-to-one and group work and helping people with goal setting and engagement with activities. The majority are based in community services (77% in 2019). Most are directly employed by Trusts (72%) or in combination with external partnerships, mostly within the voluntary, community and social enterprise sector (VCSE) (17% in 2019). A wide range of other PW roles exist at varying levels of seniority. Some roles such as Peer Specialist and Wellbeing Co-ordinator/Recovery Navigator are not based within a single team but work across services and organisations, including between primary and secondary care.
PW roles require lived experience – this is what makes them unique – and an element of ‘recovery’ (which should be self-defined).
Training for the PSW role varies considerably but is generally not accredited or standardised and mostly delivered in-house, with a small amount of external provision. HEE states this is “delivered by other people with lived experience, with support from the NHS”.
Some LX roles require additional training/qualifications e.g., degree level requirements for Advanced LXPs and Peer Development Managers.
There are challenges in finding a balance between making roles accessible to those without qualifications, but also developing pathways to more senior roles requiring development and training.
Band 3 or 4 according to Agenda for Change, although some PSWs are unpaid voluntary workers. 2019 benchmarking data found 61% of PSWs at band 3, 23% at band 2 and 9% at band 4. Senior PSW posts are generally band 5, while other roles such as Advanced LXP with more of a coordination/leadership function are at higher bands e.g., 6 or 7.
There is no registration system. A competence framework was developed by HEE in 2020 to clarify expectations of the role among employers, build understanding, develop training and guide supervision. However, Hart comments that this is “a much-contested document in the eyes of much of the PSW community”.
All Trusts reported employing PWs in a range of roles, with PSWs being the most common.
We hold specific numerical data for 21 Trusts.
Numbers per Trust across all PW roles ranged from 1 to 112 (5 to 64 for PSWs). Six Trusts reported 10 or less people employed in PW roles, seven had between 2 and 50, and seven Trusts had over 50.
At least four Trusts had wholly or partially contracted the PSW role out to the VCSE sector, which may have affected our estimated numbers, as these staff are not directly employed by Trusts.
The role was not seen as new in some Trusts, but was a fairly recent development in others.
Generally this is a growing role, with some Trusts now having large numbers: “a couple […] with about 140 PSWs now” [Stakeholder Reflection Group Participant 3-F].
The response to the role was generally positive and its value recognised, being seen as an additional rather than a replacement role: “the peer support role actually isn’t about taking on tasks that have traditionally been done by someone else, it’s about saying this is a whole new set of tasks that we want to add in the sum total of work that gets done around hope and recovery and the sharing of personal experience as a therapeutic and recovery tool in itself” [Stakeholder Reflection Group Participant 3-C].
However, Trusts reported a wide and confusing range of job titles – most common after PSW was LX Worker (11 Trusts) and Family or Carer PSW/Family Ambassador (11 Trusts). Job titles and descriptions were often not consistent, and from the data it was not possible to establish whether roles were different or only differently named.
Some LX roles were advisory/developmental/strategic rather than clinically focused. A number of Trusts also had senior PSWs or similar, up to executive level in one instance. The senior role included working with teams to prepare them for PSW introduction, developing career structures, ensuring co-production, influencing conversations and strategic direction, as well as supervisory responsibilities in some instances.
The ‘PSW’ label could often be used as a catch-all but in practice included a wide range of roles and levels of responsibility that were not apparent within the label and needed to be identified separately.
Other kinds of lived experience roles could also be developed e.g., in relation to ethnicity there was mention of: “culturally focused workers” [Stakeholder Reflection Group Participant 3-F].
Banding varied for what appeared to be the same role: some at 3, others at 4 with senior/lead roles at 4, 5, 6, 7, 8b.
Reported drivers for/advantages of implementing the role included:
emphasising the recovery focus in MH services
the ability of role holders to empathise with and relate to service users, adding lived experience
helping Trusts to realise a commitment to the values of co-production
a potential contribution to diversifying the workforce
influencing the redesign of MH services.
Challenges to implementation
Mixed success with inpatient PSWs as the environment was potentially more emotionally challenging, requiring boundary maintenance, distinctiveness of the role and appropriate support and supervision. Most role holders were therefore community based, across a range of settings.
Uncertainty around whether PSWs, particularly those at senior level, should be taking on key worker responsibilities as part of transformation of services (away from the care coordination model), at the same grade as others taking this responsibility but potentially with a very significant change in role.
Blurred role boundaries as some PSWs had joint roles, also working as Healthcare Assistants (HCAs) within the same Trust.
Variation in clear progression pathways for LX roles between Trusts. This was a key issue in some, particularly where all PSWs were on the same band; in other Trusts pathways were well established.
Challenges around professional identity and where the roles fitted within organisational structures. In one Trust, LX roles were located with AHPs and included under their governance framework, which facilitated implementation.
Issues about parity/equity, as having lived experience was said to sometimes prevent people obtaining qualifications. While the importance of maintaining appropriate requirements was noted, especially for more senior roles, this could impact on developing person specifications for PW roles compared to others at similar bandings.
Concerns about the potential vulnerability of role holders and the need to ensure they were appropriately selected, inducted, trained, placed, supervised, and supported. Obtaining a balance between the genuine integration of PSWs into service delivery structures while ensuring an appropriate level of responsibility to avoid harm was important but challenging.
Finding the time to prepare receiving teams to understand and engage with the role amidst other pressures. While challenging this was seen as key to acceptance of the role: “some people in the NHS, their interpretation of a peer support worker was that they’re very unprofessional because they talk about their own life too often” [Stakeholder Reflection Group Participant 3-E].
A lack of diversity among role holders in some Trusts. Building strong links with VCSE organisations to increase awareness of lived experience work, encouraging people to begin as volunteers followed by PSW training was reported as one way to address this in one Trust. Other Trusts were contracting with the VCSE sector for all their PSWs which could help to build diversity.
Contracting/partnership with the VCSE sector. While the role was said to be better understood within these organisations and not subject to issues of trust and autonomy as it might be within statutory services, limits could be imposed on the role and flexibility reduced when the external agency determined the job description.
Potential tensions where Trusts had both directly employed and contracted out PSWs, due to issues of parity of terms and conditions. There was also some risk that role holders may become marginalised and to mitigate this, needed to be “fully embedded into the workforce as staff who are clearly on a par with other professions” [Stakeholder Reflection Group Participant 3-C].
Having the appropriate structures and leadership in place to support implementation, for example higher-level PSW roles were said to be essential to further development of the PSW workforce.
* Research findings are based on 1) interviews with heads of HR or workforce leads in English MH Trusts and 2) stakeholder reflection groups with experts on new roles in MH services. The ways in which new roles were reported to be working in practice could differ within and/or between MH Trusts.
Health Education England. Peer Support Workers Peer Support Workers
NHS England South West. Adult Community Mental Health Roles Guide v2.0 (NHSE internal document accessed Sept 2023)
Health Education England (2020). The Competence Framework for Mental Health Peer Support Workers. Part 1 Supporting Document The Competence Framework for Mental Health Peer Support Workers. Part 1 Supporting Document
Hart A (2020) NSUN Response to the Competence Framework for Mental Health Peer Support Workers NSUN Response to the Competence Framework for Mental Health Peer Support Workers
Ball M & Skinner S (2021) Raising the glass ceiling: considering a career pathway for peer support workers. Raising the glass ceiling: considering a career pathway for peer support workers
NHS England (2023) NHS Long Term Workforce Plan NHS Long Term Workforce Plan
Health Education England (2020) National Workforce Stocktake of Mental Health Peer Support Workers in NHS Trusts National Workforce Stocktake of Mental Health Peer Support Workers in NHS Trusts