Funders and journals (such as BMJ) may require a Patient and Public Involvement (PPI) statement describing how patients and the public were engaged during their research. Because PPI policies often allow for stated omission of patients and the public in certain contexts (e.g. “Patients and the public were not involved in this study”), researchers should ensure that utilizing the CHIRON toolkit meets the definition of PPI in their specific context before referencing the following:
The foundation of the CHIRON toolkit was a set of community engagement studios with members of the public who self-identify as American Indian, Alaska Native, Native Hawaiian, Pacific Islander (AIANNHPI); Lesbian, Gay, Bisexual, Transgender, Queer, Intersex, Asexual, Two-Spirit (LGBTQIA2S+); Black/African American/Black Caribbean/African; and/or individuals with a high penetrance genetic variant. Many of these community members used their experiences as patients to inform the values and ideas that are expressed in the CHIRON toolkit.