We recognize that approaches to biorepository research that intentionally center marginalized patient and participant communities may attract critique. The CHIRON project reflects our best understanding of how to represent communities with integrity and practice good stewardship of their data. Each element of the CHIRON toolkit is grounded in the literature. Below is some additional sourcing for the foundations of the CHIRON project:
CHIRON PI Megan Doerr and academic workgroup member Joon-Ho Yu introduced the CHIRON project (prior to it receiving its name) here:
Community engagement studios, which were used to develop the CHIRON toolkit, were developed by the Meharry-Vanderbilt Community-Engaged Research Core:
The CHIRON project team led an adaptation of virtual community engagement studios:
The documentation page of the CHIRON website is a great resource for further sourcing on group harm, priority setting, demographic labeling, and more.