In the field of clinical psycho-oncology, which integrates both psychological support and oncology, several themes emerge as pivotal: preventive care, ethics, palliative care, spirituality, near-death experiences, and financial toxicity. These dimensions influence the care provided to patients, especially those with cancer, at the end of life. As a student of clinical psycho-oncology specializing in palliative care, I have come to appreciate the interplay of these factors in helping patients and their families navigate some of life’s most challenging moments.
Preventive Care and Early Intervention
Preventive care, particularly in oncology, emphasizes the importance of early detection and managing risk factors to prevent or detect cancer at an early stage. In palliative care, prevention takes a different form. Instead of preventing disease, it focuses on preventing suffering by adding quality to the days remaining . Early palliative intervention can reduce the emotional and psychological burden experienced by patients and caregivers.
Research by (Bruton et al., 2023)highlights how problem-solving skills in caregivers are critical in mitigating distress during outpatient palliative care. When palliative care is introduced early, caregivers can be better equipped to support patients, thus improving overall outcomes.
From the perspective of preventive care in palliative settings, psycho-oncologists focus on preventing emotional deterioration and fostering resilience among both patients and caregivers. Interventions such as psychological counseling, anticipatory grief support, and stress management strategies are essential for preventing emotional burnout.
The prevention of financial toxicity is another growing concern in cancer care, which also plays a key role. By addressing costs early, families are spared from crippling debt, which can exacerbate emotional distress.
Ethics in End-of-Life Decision Making
Ethical considerations are inherent in end-of-life care. Healthcare providers must navigate the difficult task of balancing patient autonomy, beneficence, and non-maleficence. Ethical dilemmas often arise when patients’ preferences about continuing aggressive treatment clash with medical advice recommending comfort care.
According to (Clare et al., 2022), healthcare providers’ own death anxieties can shape their communication with patients, often leading to avoidance of frank discussions about prognosis and care options.
For a psycho-oncologist, it becomes crucial to foster open and empathetic communication, allowing patients to express their wishes and values, as well as giving them an opportunity to perform their last ritual rites, if any.
The (FRONTLINE PBS, Official, 2015) PBS FRONTLINE documentary, “How Doctors Tell Patients They’re Dying,” explores how difficult it can be for doctors to have these conversations. Yet, these conversations are essential to respect patient autonomy and ensure that ethical decisions align with the patient's wishes.
Additionally, as discussed in (Jan Piasecki Marta Szabat, 2021) work on bioethics, different cultural perspectives on death significantly shape how patients and families approach end-of-life decisions. This underscores the importance of culturally competent care in ensuring ethical practices in palliative care settings.
Palliative Care and Spirituality
Spirituality is another critical aspect of integrative oncology, particularly in palliative care. Many patients facing terminal diagnoses find comfort in spiritual practices, which often help them make sense of their illness and impending death. According to (Rattner & Cait, 2024), nonphysical suffering, such as spiritual distress, is often under-recognized in palliative care. Spiritual support can alleviate feelings of fear, isolation, and loss of meaning, thereby enhancing the quality of life in a patient's final days.
Research on terminal lucidity, a phenomenon where patients experience brief cognitive clarity shortly before death, also suggests a significant intersection between spirituality and the end-of-life process. (Lim et al., 2020) observed that terminal lucidity can comfort patients and caregivers in some cases, making the dying process more peaceful and spiritual. For a psycho-oncologist, recognizing and addressing spiritual needs becomes an integral part of holistic care.
Near-Death Experiences and Patient Narratives
Near-death experiences (NDEs) are another compelling area that bridges spirituality and palliative care. NDEs often involve feelings of peace, out-of-body experiences, and visions of deceased loved ones. These experiences are profoundly spiritual for many patients and can reshape their view of life and death. While scientific inquiry into NDEs is ongoing, anecdotal reports from patients who have had these experiences suggest they provide a sense of comfort and acceptance of death. Addressing such experiences in a supportive manner can help patients navigate their spiritual journey during the end-of-life phase.
Financial Toxicity: A Barrier to Care
One of the most significant, yet often overlooked, aspects of cancer care is financial toxicity. As cancer treatments become more advanced—and expensive—the financial strain on patients and families grows. In palliative care, financial toxicity not only affects access to care but also impacts psychological well-being. Families may struggle with the costs of home care, medications, and hospital stays, leading to anxiety and stress.
A psycho-oncologist can play a pivotal role in helping families manage this financial burden by advocating for financial counseling and connecting them to resources that can alleviate costs.
Studies on caregivers by (Robertson et al., 2022) indicate that when financial strain is reduced, caregivers can focus more on providing emotional support and improving the patient’s quality of life.
The Role of Integrative Oncology
Integrative oncology combines conventional cancer treatments with complementary therapies that focus on the patient’s mind, body, and spirit. In my experience as a psycho-oncology student, this approach ensures that the patient's psychological, spiritual, and emotional well-being is treated with the same importance as their physical health. Integrative oncology also provides a platform for exploring non-traditional therapies such as meditation, music therapy, and acupuncture, which can complement spiritual practices and ease psychological suffering, which inturn increases the tolerability to the treatment and the resilience of the patient, as well as resilience among the caregivers.
Conclusion
As I prepare to enter the field of psycho-oncology, it is clear that preventive care, ethics, spirituality, financial toxicity, and integrative oncology will continue to shape how we care for patients in their most vulnerable moments. By recognizing and addressing these intersecting aspects, healthcare providers can offer a more compassionate, ethical, and holistic approach to palliative care. Research supports the notion that early palliative care, spiritual support, and ethical decision-making are key elements that must be incorporated into cancer care to ensure that patients receive not just treatment but dignity in their final days.
In conclusion, our responsibility as future psycho-oncologists is to champion these aspects of care, ensuring that our patients receive a treatment experience that is not just life-prolonging but life-affirming.
References
Bruton, A. E., Debosik, L. R., Pitzer, K. A., Csikai, E. L., & Washington, K. T. (2023). Problem-Solving Dimensions among Caregivers of People with Cancer Receiving Outpatient Palliative Care. Journal of Social Work in End-of-Life & Palliative Care, 19(1), 23–32. https://doi.org/10.1080/15524256.2022.2139333
Clare, E., Elander, J., & Baraniak, A. (2022). How healthcare providers’ own death anxiety influences their communication with patients in end-of-life care: A thematic analysis. Death Studies, 46(7), 1773–1780. https://doi.org/10.1080/07481187.2020.1837297
FRONTLINE PBS, Official (Director). (2015, February 14). How Doctors Tell Patients They’re Dying | Being Mortal | FRONTLINE [Video recording]. https://www.youtube.com/watch?v=jaB9M8B_Tuw
Jan Piasecki Marta Szabat. (2021). Approaches to Death and Dying: Bioethical and Cultural Perspectives. La Vergne : Jagiellonian University Press. 2021.
Lim, C.-Y., Park, J. Y., Kim, D. Y., Yoo, K. D., Kim, H. J., Kim, Y., & Shin, S. J. (2020). Terminal lucidity in the teaching hospital setting. Death Studies, 44(5), 285–291. https://doi.org/10.1080/07481187.2018.1541943
Rattner, M., & Cait, C.-A. (2024). Nonphysical Suffering: An Under-Resourced and Key Role for Hospice and Palliative Care Social Workers. Journal of Social Work in End-of-Life & Palliative Care, 20(1), 8–25. https://doi.org/10.1080/15524256.2023.2272590
Robertson, S. B., Hjörleifsdóttir, E., & Sigurðardóttir, Þ. (2022). Family caregivers’ experiences of end-of-life care in the acute hospital setting. A qualitative study. Scandinavian Journal of Caring Sciences, 36(3), 686–698. https://doi.org/10.1111/scs.13025