MDS Registry

Age > 18 years

• Newly diagnosed patient (within 100 days from the date of the diagnostic BM aspirate)

• MDS classified according to current WHO criteria (both 2008 [10] and 2016 [12] will be recorded)3

▪ All sub groups of MDS

▪ Therapy-related MDS

▪ MDS with Fibrosis (MDS-F)

▪ AML with 20-<30 percent marrow blasts (former RAEB-t)

▪ CMML and other forms of mixed MDS/MPD

• IPSS and IPSS-R Risk group classification (mandatory)4

• Able and willing to provide the written informed consent

Age <18 years

• Patient unwilling or unable to give consent

• AML with ≥30 percent marrow blasts according to WHO

• Patients with inv(16), t(15;17) and t(8;21) are considered AML and therefore not eligible

• Patients with higher risk MDS progressed from a previously diagnosed lower risk MDS that was not registered within 100 days after first diagnosis of (lower risk) MDS

Research Nurse: Nicola Slawson Ext. No:53062) Nicola.slawson@nhs.net

Administrator- Tamaryn Louw