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National reporting of involvement and engagement work
Each year, we submit an annual progress report (from 1 April to 31 March) to the National Institute for Health and Care Research (NIHR) that includes a review of the past year’s work to involve, engage and enable the participation of patients and publics (PPIE) in our research and its impact.
Our annual PPIE report is included in the Biomedical Research Centres and Biomedical Research Units (BRCUs) report on the NIHR website.
Examples of public patient engagement and involvement from our BRC
Articles, presentations and publications
Our PPI work was been featured in a number of medical and research journals and at conferences:
Murta FR, et al. The first UK national blepharospasm patient and public involvement day; identifying priorities. Orbit. 2020;39(4):233-40. UK 2020
Evans J, et al. Eyes and Vision: a perspective introducing Cochrane Corner in Eye. Eye London, England. June 2019.
Skilton, A et al. Overcoming barriers to the involvement and participation of deafblind people in clinical research. World Association of Eye Hospitals annual meeting. London, UK. June 2019.
Skilton, A. Patient engagement: UK perspective. Patient Engagement in Ophthalmology Research Special Interest Group. Association for Research in Vision and Ophthalmology annual meeting. Vancouver, Canada. April 2019.
Skilton, A et al. Overcoming barriers to the involvement of deafblind people in conversations about research: recommendations from individuals with Usher syndrome. Res Involv Engagem. 2018;4:40.
Dawson SR, et al. Ophthalmology research in the UK's National Health Service: the structure and performance of the NIHR's Ophthalmology research portfolio. London, England Nov 2018
Gothwal VK, et al. Randomized Trial of Tablet Computers for Education and Learning in Children and Young People with Low Vision. Optometry and vision science : official publication of the American Academy of Optometry. Sept 2018
Dean, S et al. ‘The patient is speaking’: discovering the patient voice in ophthalmology. Br J Ophthalmol. 2017;101(6):700-8.
Chopra, R et al. Human Factor and Usability Testing of a Binocular Optical Coherence Tomography System. Transl Vis Sci Technol. 2017;6(4):16.
Skilton A. Involving patients in research, we can and should. European Society of Gene and Cell Therapy blog. 2017.
Folkard, A et al. How patients and the public are influencing modern healthcare - perspectives on PPI in research from NIHR Moorfields BRC and Birdshot Uveitis Society. Novel models and trends for accelerating applied ophthalmic product discovery and development, Commercial Relationships Committee workshop. Association for Research in Vision and Ophthalmology annual meeting. Baltimore, MD, USA. May 2017.
Cammack, J et al. Psychophysical measures of visual function and everyday perceptual experience in a case of congenital stationary night blindness. Clin Ophthalmol. 2016;10:1593-606.
Bunce, C et al. Ophthalmic statistics notes 8: missing data-exploring the unknown. Br J Ophthal. 2016;100(3):291-4.
Bunce, C et al. Considerations for randomizing 1 eye or 2 eyes. JAMA Ophthalmol. 2015;133(10):1221.
Pasu, S et al. PIMS (Positioning In Macular hole Surgery) trial–a multicentre interventional comparative randomised controlled clinical trial comparing face-down positioning, with an inactive face-forward position on the outcome of surgery for large macular holes: study protocol for a randomised controlled trial. Trials. 2015;16:527.
Kotecha, A et al. Qualitative investigation of patients’ experience of a glaucoma virtual clinic in a specialist ophthalmic hospital in London, UK. BMJ Open. 2015;5(12):e009463.
Perros, P et al. Future Research in Graves' Orbitopathy: From Priority Setting to Trial Design Through Patient and Public Involvement. Thyroid. 2015;25(11):1181-4.
Skilton, A. Approaches to PPI in ophthalmology research: perspectives from the NIHR Moorfields BRC. European Society for Low Vision Research and Rehabilitation annual meeting. Keble College, Oxford, UK. September 2015.
Smith, HB et al. Description and evaluation of the first national patient and public involvement day for thyroid eye disease in the United Kingdom. Thyroid. 2014;24(9):1400-6.
Rowe, F et al. The Sight Loss and Vision Priority Setting Partnership (SLV-PSP): overview and results of the research prioritisation survey process. BMJ Open. 2014;4(7):e004905.
Bunce, C et al. Ophthalmic statistics notes 1: unit of analysis. Br J Ophthalmol. 2014;98(3):408-12.
Koutroumanos, N et al. Bringing together patient and specialists: the first Birdshot Day. Br J Ophthalmol. 2013;97(5):648-52.
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