Thank you to Zach in Year 3 and his Mum for contributing to this week's newsletter to help us all try to understand what living with epilepsy is like.
If you need any further information about epilepsy, please visit https://www.youngepilepsy.org.uk/
My name is Zach.
I was 6 years old when I was told I had epilepsy.
Sometimes I feel lost.
My mum gives me my medicine before I come to school and before I go to bed and she makes sure that I am safe when I am asleep.
My friends support me at break time by playing with me.
Having a child with epilepsy means dealing with parenting issues. Not being able to sleep at night because I'm worried that a seizure could happen without me being there to help Zach. The helplessness I feel when I see my child seizing. On edge when we're out waiting for something to happen. Sometimes I feel that the hospital is my second home: Zach going for appointments, blood tests, the dietician. It goes on!
Watching a child suffer in different ways is hard and I just want to take his pain away. When my child comes up to me and asks me why he's different, I say you're not. This is emotional. He says he's different because he has epilepsy. Finding answers for him to understand is hard.